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I didn't matter.

Story from nhs.uk

"I didn't matter."

About: Conquest Hospital / Rheumatology

This was a 12 month check up in the Rheumatology department at Eastbourne. I had been diagnosed a year earlier with Sjogrens Syndrome, but with no treatment, just a diagnosis. I didn't know how to treat myself or improve my life. I had various pills and potions from my GP which treated symptoms but no more knowledge than that.

I had hoped to discuss my symptoms better and ask for more advice, but was summarily dismissed as it being fairly common. As I now belong to the British Sjogrens Syndrome Ass. I have found out far more than any rheumatologist told me.

I have asked to be referred to Brighton in future, where I hope to be treated as a person and not a number.

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Responses

Response from Conquest Hospital 5 years ago
Conquest Hospital

Submitted on 01/05/2018 at 13:20
Published on nhs.uk at 14:06

We are concerned to read about your poor experience with the Rheumatology Department at Eastbourne DGH.

As a trust , our top priority is to deliver a high quality service, but it’s clear from your comments, that this was not your experience, and for this we apologise.

We would like an opportunity to speak to you so that we can apologise in person, and gather more information to enable us to look into the matter further.

If you would like to do this, please contact our Patient Advice & Liaison Service (PALS) on 01323 435886 or by email at: esh-tr.PALSE@nhs.net

In the meantime, please be assured that your posting has been shared with the Rheumatology Service Manager to review and act upon.

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