I have a genetic trait that pre-disposes me to certain cancers. As a result of a positive test for this gene I was referred to the gynecology dept at QMC/Circle. My first consultant recommended that I have annual check ups and screenings regardless of whether I have symptoms. Recently, I was changed to a different consultant without my knowledge and this consultant doesn't recommend screening at all unless I have symptoms.
Even though we know I am more likely to develop a cancer, this consultant is not willing to screen unless something is wrong. Surely it's cheaper and less life-threatening in the long run if we use the genetic markers to screen for cancer than treat the cancer once it's causing issues?!!? I'm really not at all happy. I have asked for a second opinion. This despite The Vasen “European” guidelines 6, published in 2013 and used by many genetic and gynaecology departments state that women with LS should be seen by a gynaecologist and offered the following after being given full advice about pros and cons :- “Monitoring of the endometrium by gynaecological examination, transvaginal ultrasound and aspiration biopsy starting from the age of 35-40 years because this may lead to the detection of premalignant disease and early cancers. This should be done every 1-2 years.”
This seems in line with what my original consultant recommended but not the current one. Now, I just have to live in fear of having this cancer like a number of relatives have .. one who passed away at my age. I actively try not to google about this, but I really think the NHS/Circle should get its ducks in order. Surely the future of medicine is prevention?!
"NHS patient - consultant change without my..."
About: Circle-Nottingham NHS Treatment Centre Circle-Nottingham NHS Treatment Centre NG7 2FT
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