"Feel very let down by a service which is meant to..."
About: National Hospital for Neurology & Neurosurgery, Queen Square National Hospital for Neurology & Neurosurgery, Queen Square London WC1N 3BG
Posted via NHS Choices
I was initially referred to the NHNN Autonomic Unit in Easter 2010, it took 4 months to get an initial appointment with one of the registrars which went well and conservative management was started. It was 10 months before I was able to have the tests carried out. I was meant to be having the tests done as an inpatient because I am a wheelchair user however when I arrived at the hospital:
1) They'd booked me to stay in a hotel
2) They'd only booked me into said hotel for 1 night
3) Despite telling me I only had 2 days worth of tests (and me double checking over the phone that this was the case), it turned out I was actually booked in for 4 days
4) I was told by the doctor that it should only be 4-6 weeks before I get the results
7 weeks after the tests were carried out, I contacted the hospital to find out when my follow up would be and got a letter this morning for an appointment 9 months after the tests. I understand that it is a busy hospital but I think this is appalling and an unacceptable length of time to be left without any proper treatment.