"I feel as if no one cares"

About: Hull Royal Infirmary / Neurology

(as the patient),

I feel like a decomposed corpse, and I have done for the last 24 and a half years! From my surfing on the Internet + going into my local pharmacy and getting a 'printout' I have discovered I've got "Chronic Fatigue Syndrome"/Myalgic Encephalomyelitis.

Every one of the 20 odd GP's has dismissed me telling them of my multiple symptoms, that I cant sleep for 22 and a half hours per day and that I cant think properly, with the good old fashioned "Pull yourself together, man" and the other old chestnut "Have a stiff upper lip" etc.

I feel as if not one of them has cares. Maybe my present one half cares, I am not sure yet. I have only been with him a few weeks. We’ll see how it goes.

The GPs I have seen seem to be clueless about diagnosing and helping with ME/CFS.

After having to threaten my last GP with the NHS Ombudsman, I finally got an Appt with a Neurologist

Now the first result has come back 'clear', she wants me to forget the idea of getting anymore NHS Treatment! I want another scan, but first having a dye injected into me, to give a much improved 'picture'. I don’t want her to give up at the fist hurdle

Yours Sincerely.

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