This is Care Opinion [siteRegion]. Did you want Care Opinion [usersRegionBasedOnIP]?

"I feel they have given up on me."

About: Ailsa Hospital / General Psychiatry Arrol Park Resource Centre / General Psychiatry (Mental Health)

(as the patient),

I have been discharged from from the out patient clinic in psychiatry. I am an attender of the staying well group that psychiatry referred me to. It is useful to a limited extent. But I will still ultimately be very unwell. A negative attitude I know but I am trying to view things more positively. Its not working too well. But my condition remains highly debilitating and severely affects my daily activities.I can't start working or a job while this condition remains as severe. Too much anxiety to drive too. Social anxiety levels are overwhelming very often still. So i am not living a normal life and have very limited money through Employment support allowance though I  spend the limited money efficiently. Wanting my life back.

 I am on two medications for Generalised Anxiety Disorder but also suffer from a high level of depression.  I have requested my particular anti-psychotic medication be changed to another one or different class of medication. An unpleasant side effect suffered. The reason for this being extreme weight gain of 3 stone in 5 or 6 months. Only started when I went on this particular medication. This request of medication change has been refused. This is significantly affecting my confidence and adding to my depressive mind and anxiety.  And my anti-depressant medication is at its maximum allowed dose. It is also of limited effectiveness but possibly some improvement. 
I have also previously seen an occupational therapist and received CBT. Little benefit achieved so therapy was suggested to end by my therapist. The actual therapist was good at their job, very professional, knew their stuff and i got on well with them.  
A major problem is that I have tried numerous medications with little effectiveness.
 It seems to me that the psychiatric practise has essentially given up on me and the only leeway to alter the medication allowed by psychiatry is to increase the dose of the medication that is causing the weight gain. I am getting exercise which is limited by other conditions and following a healthy diet according to a dietician. Limiting my calorie intake but the BMI is still at obesity level and little if any weight lost in last few months. 
So I am in a state of limbo. Still suffering a lot from my conditions that are significantly affecting my daily functionality. The mental illness is still causing me a very high and unacceptable level of suffering. This has been the case for 10 years. Way too long. I feel hopeless and useless. Nothing is working. I am have been trying very hard to use all options to get better. Still in a very bad sate though. I am still suicidal often. 
Disappointed at getting discharged. As I feel my medication needs revised. I even got a second opinion from a different psychiatrist but they won't change my treatment. I know a lot of options have been tried but I feel they have given up on me. Not happy with this at all. I don't expect any miracle cure but I do need further treatment in my opinion and the medication altered if possible. I've done some very extensive research on the subject and there does appear to be other options that are being medicinally ignored.
Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Eunice Goodwin, Patient Feedback Manager for NHS Ayrshire and Arran, Quality Improvement and Governance Team, NHS Ayrshire and Arran 6 years ago
Eunice Goodwin
Patient Feedback Manager for NHS Ayrshire and Arran, Quality Improvement and Governance Team,
NHS Ayrshire and Arran

I respond initially to most of the posts and ensure they are passed to the appropriate team whether they are compliments, observations or grumbles. It is important to make sure all issues are addressed and I try to encourage that to happen for all the posts as required.

Submitted on 04/04/2018 at 15:19
Published on Care Opinion at 21:54


picture of Eunice Goodwin

Dear owl,

I am so sorry to hear how unhappy and unwell you feel; and for so long too. It look as if you could be feeling like you are on a merry go round. I think one of your messages is that no-one is listening to you and you are on your own. I would like to reassure you that you are not on your own.

As you are probably aware, as with most things that affect our health, getting medication and treatment can be complex and the best outcome is not always straight forward and at times, not obvious. It can be a trade off between what works positively for an illness balanced against side effects. As I understand it, this can be very difficult to manage and may be extremely difficult (for you) to cope with.

It seems as if there are a few options. Can I encourage you to do talk to your GP about how you feel about this? Can he refer you back to Psychiatry so you can talk about how you are feeling (not being heard for one thing)? I’m not sure if you have a CPN or not but if you do, can you speak to them about how you are feeling about your care?

I don’t know which area you live in but you can also contact someone in the advocacy service to help you with your appointment. They can go to appointments with you and help support you at the appointments. This support can be invaluable and may help mediate in order for a satisfactory outcome for you.

The numbers for the advocacy service are-

North Ayrshire – 0800 652 2986

East Ayrshire – 01563 574 442

South Ayrshire – 01292 264 396

I do hope you get the care and support you need to feel better.

Kindest wishes,

Eunice

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
Opinions
Next Response j
Previous Response k