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"My fiancée has gone through so much psychical torment"

About: GPs in Leeds St James's University Hospital / Gynaecology

(as a carer),

My fiancée has PCOS and was also diagnosed with endromitiral hyplesia without atypia. The doctor that conducted the hysteroscopy has told her nothing but lies and has been nothing but inconsiderate.

She was told she'd have to have a hysteroscopy, she was told it would cause a "mild discomfort" at most. She wasn't told to take an ibuprofen or paracetamol to help with the excruciating agony. Not like it would have helped, since it caused, as described, excruciating agony. My fiancée was bedbound after the procedure for months to come. So much even that tramadol was hardly enough to take the edge off the pain. She couldn't even sit in discomfort, let alone without pain.

She was then told she'd need a marina coil and she was again told it would not hurt, "you won't even feel it in there" . She made the GP promise that she could make an emergency appointment to have it removed if it hurt. The GP promised and then placed the coil. Within a week my fiancée was in agony so we called to have it removed the same day. She was then told that the earliest appointment available was a week away. So she pulled the coil out herself.

She was then put on the mini-pill, which caused her a migraine so horrendous that she was blinded. She couldn't stay awake for more than thirty minutes at a time. Her own chewing of food sounded what a siren blaring next to your ear would sound like to a normal person. Her moodswings on this pill became beyond violent, had she been in public she'd have been arrested.

Right now she has been discharged without a direction, she has no clue what can be done and the NHS has not informed her about the numerous other procedures that can be done to determine whether her cells have become cancerous. Her gynaecologist hasn't even told her about the blood test that can be done to find out, they insist on shoving that barbaric mechanism back into her womb without any kind of anaesthetic.

My fiancée has gone through so much psychical torment, emotional trauma and psychological distortion that she's at the point where she would prefer developing cancer instead of going through this butchery of a gynaecological procedure for preventative measures. Because if she developed cancer at least they would give her a hysterectomy and be done with it.

I think for the 'most advanced health care system in the world' to make a patient feel like they would prefer cancer over treatment is shocking.

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Responses

Response from Leeds Teaching Hospitals NHS Trust 6 years ago
Submitted on 14/03/2018 at 10:16
Published on Care Opinion on 15/03/2018 at 09:55


Dear imand93

Thank you for taking the time out to write to us. I was extremely sorry to read of the poor experience your wife had whilst in our care and I am very sorry you feel that we did not deliver care that met your expectations.

I have passed your comments on to the Gynaecology Matron for information but it would be very helpful and beneficial for our services and the care of future patients if you would discuss these issues further with the Trust’s Patient Advice and Liaison Service (PALS); this would also allow us to look into the matters you have raised in further detail.

Please call our Patient Advice and Liaison Service (PALS) on 0113 2066261 or alternatively email patientexperience.leedsth@nhs.net

Thank you for taking the time to write to us.

With kind regards
Rosie Senior
Nurse Patient Experience

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