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18 months of deteriorating health and still no action

Posted By malpearce1975

"18 months of deteriorating health and still no action"

About: Leeds General Infirmary / Neurology

(as a relative),

My wife is 40. In Nov 2015 she started to suffer regular headaches marked with speech loss and loss of balance. In Feb 2016 she was rushed into a&e with symptoms of stroke or worse; they tested for brain stem cancer and stroke but found nothing so suggested vestibular migraine.

Since then she has felt repeatedly fobbed off with pills and 'come back in three months' despite her debilitation getting worse and worse. She is now unable to walk for more than 100m without having an episode and had to give up her pgce because she failed a h&s risk assessment for the travel.

She has collapsed and hit her head causing a concussion. We moved house because the old house wasn't safe. She has spent 40 of the last 48 hours asleep - a regular occurrence.

I am desperate to get her properly examined especially now that her inability to exercise or eat properly has brought on diabetes.

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Responses

Response from Leeds Teaching Hospitals NHS Trust 6 years ago
Leeds Teaching Hospitals NHS Trust

Submitted on 14/08/2017 at 17:27
Published on Care Opinion on 15/08/2017 at 08:37

Dear malpearce1975

Thank you so much for taking the time out to write to us regarding your wife's experiences whilst under the care of Leeds Teaching Hospitals. I was very sorry to read that your wife is suffering with regular headaches and you feel her health is deteriorating.

Could you please contact the Trust’s Patient Advice and Liaison Service (PALS) at your convenience so they can pass on your concerns to the relevant service managers who can look at resolving any worries you may have regarding the treatment your wife is receiving at the moment.

Please call our Patient Advice and Liaison Service (PALS) on 0113 2066261 or alternatively email patientexperience.leedsth@nhs.net

Thank you for taking the time to write to us.

With kind regards
Rosie Senior
Nurse Patient Experience

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Update posted by malpearce1975 (a relative)

Thanks for your response. She's seen the GP again today and updated them with her symptoms again. I will send an email to PALS.

Response from Leeds Teaching Hospitals NHS Trust 6 years ago
Leeds Teaching Hospitals NHS Trust

Submitted on 15/08/2017 at 14:40
Published on Care Opinion at 14:45

Dear Malpearce1975

Thank you very much for updating me with this information. The PALS team will respond once they have received your email.


kindest regards

Rosie

Senior Nurse

Patient Experience

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