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"Disappointing and terrifying at times"

About: James Paget University Hospital / Accident and emergency

Very long wait time at A&E, despite my being on a pain scale of 8/10 with infection, screaming, and groaning, with continuous diarrhoea, vomiting, and possible perforated bowel. I waited 4 hours before being given any treatment, including pain relief. I had also taken senna as instructed for a sigmoidoscopy the next day, and the A&E doctor told me I could have had a bad reaction to the senna. The receptionist at A&E was kind, and let me go into a private room on a commode while I waited. After being admitted, it became apparent that there is a lack of communication between the different departments. The ward nurses knew nothing about the senna, and tried to give me more the next day. I was still nauseous, and was given pills even though I couldn't keep anything down. I vomited up one of my pills. It wasn't replaced. I had the sigmoidoscopy, and the gastroenterologist said I could go on a light diet. The ward nurses said it wasn't up to them, and I was kept on liquid only for 2 more days. I kept reminding them, yet I was either ignored, or the doctor in charge didn't switch it. So I didn't eat for several days. I was on a drip, and dehydrated. Bloodwork was done, then they realised they had put it in the wrong vials, so had to take more. This is not something one wants to happen when dehydrated, and starved. I was sent home without a steroid medication I needed for an IBD. I had to wait until the next day to pick it up because the pharmacy was closed. I ended up taking the medication late because of this, and had to see my GP because of severe pain, which was because my medication was late. Why this wasn't sorted by the pharmacy before discharge, I cannot fathom. I wasn't told anything about the steroid, including important information like take it in the morning because it keeps you awake at night. These are just a few highlights, which I put down to a lack of communication, and a lack of co-ordination between the different departments. There were caring, helpful workers on the ward, and I am grateful to the sister who was attentive and listened. At the weekend, there was a lack of staff, particularly nursing assistants. I am supposed to have a follow up appointment with a gastroenterologist after 6 weeks. 6 weeks is up and I have heard nothing, no appointment has been set. I have phoned many times, and cannot get through to find out about my appointment, follow up care, test results, or further tests I am supposed to have. This leaves me in limbo, fearing what will happen next when my steroid course finishes.

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Responses

Response from James Paget University Hospital 6 years ago
James Paget University Hospital
Submitted on 01/08/2017 at 08:41
Published on nhs.uk at 11:34


Thank you for taking the time to provide your feedback.

I am really sorry to hear that your experiences have not been positive recently.

We are committed to learning from our patients' and value your comments.

We would really appreciate it if you could call our patient advice and liaison services (PALS) team on 01493 453240 so that we can gain more detail regarding the issues you have raised in order to explore these further with the teams involved in your care.

Kind Regards

Amanda Hood

Head of Patient Experience and Engagement

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