I had an urgent appointment with the neurologist (which was also a follow up from last year -when I had one issue), since then I have deteriorated - I have severe facial pain from Ramsay Hunt Syndrome and Trigeminal neuropathy, I have fell five times, I have had dizzy turns, I have severe weakness on my left side, I have severe pains in my hands, severe pains in my feet and the registrar was not concerned about anything - just increase the medication and because I hadn't broken any limbs it was ok. So in other words if I break a limb I will be taken seriously.
My eye is partially closed, eye brow pstosis and when I asked if it will improve -they asked how long I had it - which would have been on the file - on no, they had no notes despite my previous visits to County hospital and Royal Stoke.
They said come back in four months, I asked if they was going to test the weakness - they tested reflexes and that was it, they didn't test the strength in my leg at all - even though I said it may be the cause of my falls.
They discussed medication, asked why I was on hayfever medication and asked what would happen if I stopped it - not rocket science - the hayfever will come back was my reply, so they said -I will do a referral request to ENT, so I had gone about severe weakness, falls, not being able to eat -and come away with a letter to my gp to refer me to ENT - what a joke.
They said the hayfever medication wan cause dizziness and memory issues with long term use - I have looked it up and it is the safest medication to use long term.
I came out without asking about my hands swelling, a rash which the dermatologist said was related to Ramsay hunt or medication.
I had to complete a three page questionnaire before I went in - This asked about head aches etc - and yet they never even looked at it.
My friend went with me for support as I am off work with depression, we came out and were dumbstruck - waitied for an appointment having been told previously if I fall again to go to Aand e.
I wanted to updated my phone number with the receptionist - they were making an appointment for somebody and could only do one job, so asked me to go back on my way out - I forgot. Then for the blood pressure - first machine didn't work, second had low battery - third time luck. Then the registrar shouted me by the initial of my first and middle name - no surname.
From going into neurology to leaving -I feel it was a catalogue of errors, waited almost six months for the follow up - and then from April to discuss the other issues, to be told increase painkillers, come back in four months - maybe I will break a limb in the meantime and then have a diagnosis! ! !
WASTE OF FUEL, TIME AND £3. 00 PARKING
"a total waste of time"
About: Royal Stoke University Hospital / Neurology Royal Stoke University Hospital Neurology ST4 7LN
Posted by y k (as ),
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