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"a total waste of time"

About: Royal Stoke University Hospital / Neurology

(as the patient),

I had an urgent appointment with the neurologist (which was also a follow up from last year -when I had one issue), since then I have deteriorated - I have severe facial pain from Ramsay Hunt Syndrome and Trigeminal neuropathy, I have fell five times, I have had dizzy turns, I have severe weakness on my left side, I have severe pains in my hands, severe pains in my feet and the registrar was not concerned about anything - just increase the medication and because I hadn't broken any limbs it was ok. So in other words if I break a limb I will be taken seriously.

My eye is partially closed, eye brow pstosis and when I asked if it will improve -they asked how long I had it - which would have been on the file - on no, they had no notes despite my previous visits to County hospital and Royal Stoke.

They said come back in four months, I asked if they was going to test the weakness - they tested reflexes and that was it, they didn't test the strength in my leg at all - even though I said it may be the cause of my falls.

They discussed medication, asked why I was on hayfever medication and asked what would happen if I stopped it - not rocket science - the hayfever will come back was my reply, so they said -I will do a referral request to ENT, so I had gone about severe weakness, falls, not being able to eat -and come away with a letter to my gp to refer me to ENT - what a joke.

They said the hayfever medication wan cause dizziness and memory issues with long term use - I have looked it up and it is the safest medication to use long term.

I came out without asking about my hands swelling, a rash which the dermatologist said was related to Ramsay hunt or medication.

I had to complete a three page questionnaire before I went in - This asked about head aches etc - and yet they never even looked at it.

My friend went with me for support as I am off work with depression, we came out and were dumbstruck - waitied for an appointment having been told previously if I fall again to go to Aand e.

 I wanted to updated my phone number with the receptionist - they were making an appointment for somebody and could only do one job, so asked me to go back on my way out - I forgot. Then for the blood pressure - first machine didn't work, second had low battery - third time luck. Then the registrar shouted me by the initial of my first and middle name - no surname.

From going into neurology to leaving -I feel it was a catalogue of errors, waited almost six months for the follow up - and then from April to discuss the other issues, to be told increase painkillers, come back in four months - maybe I will break a limb in the meantime and then have a diagnosis! ! !

WASTE OF FUEL, TIME AND £3. 00 PARKING

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Responses

Response from Angela Grocott, Head of Patient Experience, University Hospitals of North Midlands NHS Trust 6 years ago
Angela Grocott
Head of Patient Experience,
University Hospitals of North Midlands NHS Trust
Submitted on 08/06/2017 at 09:31
Published on Care Opinion at 09:42


I am so very sorry to read that you have had such a poor experience. I would be very grateful if you could contact our Patient Advise and Liaison Service (PALS) if you have not already done so to allow us to support you at this time.

PALS can be contacted on 01782 676451 or via email to patientadvice.uhnm@nhs.net.

With kindest regards

Angela Grocott

Head of Patient Experience

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