My daughter is a wheelchair user who also has Asperger's. She is not learning disabled. These criteria seem to be impossible to cater for. Organisations seem set up for either wheelchair users or people with mental health difficulties not both.
For example, try accessing Number 6 (the main source of support in Edinburgh for people with Asperger's) - it moved from a barely accessible building to an inaccessible one. People don't understand the problems and don't ask. They added stair lifts specifically to improve accessibility but failed to provide a means of transferring from one stair lift to the next - other than her crawling or dragging herself across the floor!
She has funding a care package from the council which should be great. The council can't provide suitable care as they cannot guarantee all female staff (for a young woman's personal care! ). Care agencies are OK for a while but, once they get wind that her family will cover for them missing shifts rather than leaving her in the lurch, the number of covered shifts rapidly decreases.
Going down the PA line would be a massive task - recruiting, training, supervising etc. I'm not sure we've got the energy to spare plus it's a long term commitment that we'll not be around to fulfill and she wouldn't be able to take on herself.
"Gaps in care provision"
About: Bright Care - Care at Home Bright Care - Care at Home Dalkeith EH22 1RT Edinburgh, City of Edinburgh, City of Lynedoch Care Ltd - Care at Home Lynedoch Care Ltd - Care at Home Edinburgh EH10 5LY Mochridhe (Edinburgh & Lothians) Limited Mochridhe (Edinburgh & Lothians) Limited Edinburgh EH9 1PJ Number 6 Outreach Service Number 6 Outreach Service Edinburgh EH1 1NB
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