I'm so sad as a mum of a 29 year old daughter who has suffered with cyclic vomiting syndrome since early childhood, and has severe retching and unusual behaviours when so sick and dehydrated. My daughter is seeing a neurologist very soon she is under a gastric doctor who knows all of my daughters illness and behaviours. She often only in episode has to come hospital and receive
IV fluids canular meds, and go home and battle through it. On most occasions staff are helpfully in a busy environment. This week my daughter had two visits for meds IV fluids, and Saturday 6..5.17 My daughter had to go back to A..E.. with her dad. on arrival with her dad at hospital they gace her care plan to a member of staff who saw my daughter looking weak, agitated and not aware of her surroundings when in episode. This member of staff was refusing at first her IV fluids saying has she took drugs as my daughter was very vulnerable in episode. This member of staff quickly took her dad off on his on to question him, which left my daughter scared on her on in cubicle we never can leave her alone in this state. My daughter went searching calling dad and she was ignored. Mean while her dad asked lots questions of my daughters appearance as the nurse asked if she was addicted to IV drips and said she looked like she had been drug taking. How dare the nurse assume things we go through.
We look after our daughter in episode she looks mentally ill but it's just how the episode affects her. She had low pottasiom too and to. Assume the nurse said on drugs wow. How debilitating for my hard working daughter who. Works for council and runs a home.
Carers for her daughter exceptionally well .Only in these episodes she can't care for her self. . .These behaviours.
Are linked to brain function and migraine related and testing soon for epilepsy ' so how dare the nurse treat her and her father this way .Eventually. Given IV fluids. Injections and low pottasiom through IV my daughter. After episode. Goes bk to. Work full time runs a good home ect. I will be putting in complaint. Never assume or judge. A person by there appearance especially in times of. Severe illness
"Daughter with CVs"
About: Royal Berkshire Hospital / Accident and emergency Royal Berkshire Hospital Accident and emergency Reading RG1 5AN
Posted via nhs.uk
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