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"Awful experience over such a long period"

About: Mersey Care NHS Foundation Trust

(as a service user),

My experience with Mersey Care has, on the whole, been nothing short of horrific. I was under the care of the CMHT for almost a year, during which I had two periods as an in-patient. I have been diagnosed with Asperger Syndrome and depression. On the first occasion, I was told clearly that unless I went to hospital as an informal patient I would be detained under the mental health act, so of course I was admitted voluntarily (to a privately-run hospital). I now don’t believe that I would have been detained, but the experience was terrifying. Moreover, I was held in a room about 9 square metres in size for 5 hours whilst a bed was arranged. This brought up terrible traumatic memories from being locked up as a child.

For the second hospital admission, I was at Clock View hospital (again informally). I was admitted on Saturday evening, after meal time, so one of the nurses got a sandwich and a yoghurt for me to eat. I was terribly distressed at being in hospital – I was frankly given a room containing a bed and a toilet/shower and left there to fend for myself. I reached a point where I asked to be discharged on the following Wednesday (4 days later) because I felt the hospital experience was causing me distress in return for absolutely nothing in the way of care. For example, I did not consume a single calorie in food until between the sandwich and yoghurt on Saturday night until I was dicharged, yet (despite being observed every 15 minutes 24 hours a day) this was not noted by anyone! My experience of Clock View seemed like one of imprisonment.

In July 2016 I asked to be discharged from the CMHT, because I felt I was not making any progress and that I was not receiving the care I’d have hoped for; the CMHT obliged and discharged me, but my psyhiatrist said he’d write to my GP to say they’d accept a referral again at any time. I told my psychiatrist at the time that I was unlikely to return to the care of the CMHT in the future because my experience had been so unsatisfactory.

In November 2016 I started feeling suicidal again. I wrote to the Mersey Care head office and said that I was feeling suicidal again, but felt I had nowhere to turn because I felt the CMHT was not a viable option for me. I received a phone call from PALS, who said that one of the Directors would like to meet with me. I reluctantly agreed, and the person from PALS said they’d be in touch with an appointment time. I naively expected this to be within a day or so. The person from PALS took TWO WEEKS to ring back, and the appointment they offered was a further TWO WEEKS in the future (I wrote the letter on early November – the appointment offered was in mid December).

I’m at a point now where I just have no hope at all for the future. I’m desperately suicidal (like to the point where I have a plan that I feel like I want to carry out today) and the very, very last place I want to be is under the care of Merseycare.

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Responses

Response from Healthwatch Liverpool 6 years ago
Submitted on 17/05/2017 at 11:56
Published on Care Opinion at 12:06


Hi

We're sorry to hear about your experiences. It sounds like you've been having a really difficult time. We are very concerned by how you describe your current state of mind. This is not an easy subject to discuss online and we'd strongly advise you to seek medical help urgently if you do feel that you might carry out your plans - either from your GP or from A&E at Aintree Hospital or the Royal Liverpool (we don't know where you live so can't suggest which would be your nearest).

At Healthwatch we don't provide services ourselves. We can however listen and help guide people to services which may be of help. We'd be happy to talk to you about your experiences and see what options we can suggest. We are independent of the NHS and here to listen to and support patients to have their experiences heard.

I know that you are frustrated by services but Mersey Care may also be able to talk to you to try to resolve your concerns.

If you would like to speak to one of our Information Workers who deal with our enquiries, please call us on 0300 7777007 or email us on enquiries@healthwatchliverpool.co.uk.

Regards

Julie Anderson, Healthwatch Liverpool Coordinator

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Update posted by HopelessAspie (a service user)

I think the thing that I wanted to get across most of all from my experience is that I am convinced there is no medical help; GP services and services at A&E are essentially gateways to the CMHT, or worse, to that awful hospital environment. I am frustrated, I'm frustrated because I am trapped in a place where my choice is between tolerating poor care or no care at all.

My motivation for posting wasn't really to find solutions, it is more because I believe the atrocious mental health services that exist are so poor because they are conducted in secret, and complaints are dismissed as "frustration". Reasonable people become frustrated when services are poor.

I have raised my concerns with Mersey Care, and more recently with the Clinical Commissioning Group, in writing, on three separate occasions. I have yet to see any evidence at all of being taken seriously. My most recent complaint has been with the CCG for almost 8 weeks and I am still awaiting a response, although having had to chase up an initial acknowledgement I am hardly surprised.

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