"Interminable wait"

I had an Mri over a year ago. It took 8 months before i wad given my results which showed demyelination. I was told I likely had ppms but needed a lumbar puncture to confirm whether it was this or just ms. I was told this would happen within a fortnight but heard nothing so began phoning weekly to find out why not. It eventually took 4 months to happen. I was told the results would be available a few days later. I rang and had it comes firmed they'd been received and told I would receive a letter in a few days. That was a fortnight ago. I have runs since but always get an answer phone and now am other getting call backs. I want to engage with my illness produntimely. Everything I read says early treatment is vital after diagnosis but I am a year in without enough of a formal diagnosis to access a physio, Ms nurse etc. This illness is a terrifying one to face without support and the delays are just making me anxious and depressed, forcing me to battle at a time when I feel least able to cope. When I see a consultant they seem excellent but the delay in between appointments and the underpinning infrastructure sucks.