"I am disabled and I feel abused by the system"

About: Brighton and Hove Sussex Rehabilitation Centre (Brighton)

(as the patient),

HI I have been a wheelchair user now for about 14 years at 1st I was using as an aid to go shopping, has anyone tried shopping on a pair of crutches? It's imposable. so my doctor got me a wheelchair off of the NHS, you see at the time it was just my right knee giving out all the time and they tried everything from physiotherapy to surgery and it didn't work. I told all of the doctors I met that the more physio I did the more my knee hurt and it would still give out when I walked on it so, so eventually they got me a leg brace.

Shortly afterwards my other knee started to do the same thing, so it was decided that I had uncorrectable chondromalacia patella,which basically means my knees are misaligned and there is nothing they can do for me except give me leg braces and a wheelchair.(walking in braces is incredibly tiring and I have CFS (Chronic Fatigue Syndrome) too.

So as time went by I started getting problems with my back so I needed the wheelchair even more it was found that I have 3 degenarative disks from L3 to L5 and bilateral stenosis at L4 plus a severe denervation on the left at L5 also some mild involvement on the right of L5, not to mention a reverse lordosis in my cervical spine resulting from a previous broken neck in my 20s' and to top it off a 28.4degree lordossis in my lumber spine. In short my skelleton is a mess.

I have however found a spinal neuro surgeon that thinks he can fix my back and neck. So the social service ask my local rehab centre for me to see a rehab specialist before commiting to any sort of adaptions or rehousing. Guess what not only does the doctor at the rehab centre think that once the problems with my spine are corrected they can work miracles too by getting me (as they put it) walking and back to a productive life.

What I really need is my adaptions done and a new wheelchair as the NHS one I have is as manoeuvrable as a supertanker and needs real effort to get going, and my friends one that was lent to me is now broken. Not only am I in a flat that has only part of the bathroom adapted but also I haven't got a decent manual wheelchair I can use which rather limits me. Then to top it all off the social services here in Brighton and Hove cut my care package off too, and they call this social care I think not.

Personally I think the doctor should be struck off and the social services should also be held accountable. After all, do they think I use a wheelchair for the fun of it or do they just think I'm a benefit cheat? if they think the latter then they need to secretly film me and try and catch me out, but they won't because there is nothing to catch me out on.

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Response from Brighton & Hove City Council

I am concerned that you believe that this department unfairly withdrew your services. If you would like me to investigate this please contact me at john.barradell@brighton-hove.gov.uk with your personal details and l will look into what happened. Alternatively please contact our Access Point who will be happy to discuss with you the need for a new social care assessment. Our Access Point can be contacted by telephone on 01273 295555 or by email accesspoint@brighton-hove.gov.uk John Barradell, Chief Executive, Brighton & Hove City Council
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