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"Diagnosis period"

About: St John's Hospital / Cancer services

(as the patient),

I fell ill in September 2015 and was diagnosed late October with Hodgkin's Lymphoma. I had chemotherapy starting 4 November and had 3 different treatments, 12 rounds of ABVD, 3 rounds of GDP and 3 rounds of brentuximab culminating in a stem cell transplant on 12 October 2016. Throughout my treatment I have received excellent and timely treatment with minimal waiting times.

There are 2 areas though I feel could be improved. The first is in patient awareness of the symptoms of cancer. I never went to my GP till I was ill but retrospectively there were clear signs of cancer which through my ignorance of the symptoms I never picked up.

The second area was with the initial diagnosis of my cancer. I got admitted by my GP to St Johns hospital and picked up by the ward consultant who diagnosed cancer. I then was handed over to the oncology unit. What did not happen was someone explaining to me who was doing what and where I could go to for information ( it took 4 weeks to diagnose my cancer ). During this period I was contacting anyone whose number I had to get my test results etc. If someone had explained the diagnosis/treatment process and I had a single person to speak to it would have helped greatly.

Once I had been diagnosed with cancer and I had met my consultant that communication was in place but there was certainly a gap in the diagnosis period.

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Responses

Response from Jeannette Morrison, Head of Patient Experience, NHS Lothian 7 years ago
Jeannette Morrison
Head of Patient Experience,
NHS Lothian
Submitted on 30/11/2016 at 18:25
Published on Care Opinion at 20:11


Dear Dsr

Thank you very much for sharing your experiences.

I was really pleased to hear of the excellent and timely treatment you received whilst receiving your chemotherapy and the stem cell transplant last month. I have passed this onto the team who I am sure will be really pleased to hear this.

On the other 2 points that you have raised, I have shared your post with the teams at St John's Hospital and the Western General Hospital. l hope that they will be able to use your feedback when considering what information is provided to patients, the ways in which we explain to patients this type of information and how we support them during what is a very difficult and stressful time for both themselves and their families.

Thank you again and l wish you well in your recovery.

Kind regards

Jeannette

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