"Treatment of M.E. Patients with new symptoms"

About: Doncaster Royal Infirmary / Accident and emergency

Wife was admitted to a&e with major sleepiness and bowel incontinence.

Sleepiness put down to possible sleep apnea.

Bowel incontinence was checked by usual test neither the doctor or wife felt any movement. Wife complained of back and neck ache, neck was checked and was swollen.

Doctor asked if she could move her toes, toes on left side moved very little. Bowel was then put down to her M.E. had a ECG and then discharged.

Without any pads or refferal to contience nurse.

Called sheffield M.E. center a few days later to ask if bowel incontinence was a symptom was told it is not. We are left wondering what to do now? We are now left with my wife still having no use of her arms and legs apart from when her right arm comes back occasionally and no idea if or when her bowels have opened. The doctor was fine but had the feeling senior doctors were telling them they were wasting their time.

Story from NHS Choices

Do you have a similar story to tell? Tell your story & make a difference ››