"Poor aftercare at home from the Aspergillosis..."

I've been coming to the Aspergillosis centre for three years now and at first was so happy with the care and help I was getting. I felt they understood me and was able to diagnose my chronic pulmonary Aspergillosis and aspergilloma giving me the correct treatment. I would of classed them as outstanding!But lately my health has been getting worse and when I visit the clinic they are very good,when I leave to go home I am to contact them if I feel unwell or any changes. I leave messages and call but no one seems to be bothered and I get no contact back,it's very,very poor care! I've been told I need iv treatment and scans and no one seems to be sorting it out. All I get told is they are short staffed. It's all very disappointing and I can't believe I'm having to say negative words about the one place/people that I thought was going to help me. I feel I'm being left to die and at 35 and a mum of 3 this isn't the way I want to be.:(