"Son's treatment for his seizure"

About: Derbyshire Health United / NHS 111 East Midlands Ambulance Service NHS Trust / Emergency ambulance Queen's Medical Centre

(as a parent/guardian),

I am writing to say a heartfelt thank you to all the staff involved in the care of my son who had a seizure.

My Wife called the 111 service who calmly advised her on what to do. I came home just after her call and helped with the call. The adviser ensured we checked his breathing and kept us calm.

When the ambulance arrived - about 5 minutes after I came - the paramedic picked my son up and calmly took him into the ambulance. The other paramedic, who I presume was quite new (but not naive) was very calm and helpful. After a while the decision was to take my son to hospital.

We both travelled with them with my Wife in the back of the ambulance watching and being advised on what the paramedic was doing at all times. I sat in the front with the other paramedic who was most polite as she thanked all the drivers who made way for her to pass. She was also kind enough to ensure we 'didn't roll about' as she drove swiftly and gently through the City. At one point she slowed down to enable the other paramedic to complete a procedure.

Our son was then taken to the ER where the ER staff took over. Obviously we were quite distressed seeing out son who was still in a seizure. One of the Nurses (I think she wore a dark blue uniform) showed empathy and explained what was going on. Eventually, we were lead to a waiting room as they worked with my son.

Out son was then taken to ECCU (Children's Intensive Care) as he was out into an induced coma (I think). It was here he slowly made a recovery and several tests were completed to try and identify what caused his seizure. The staff here were acutely aware of how distraught we were and offered the opportunity to cradle our son in our arms whilst they were completing procedures. I must admit I did find it difficult to see him there unconscious linked to various drips and feeds but I felt comfortable to feel this way. We were offered a room to stay overnight which was very kind.

After three days (I think) my son was then transferred to the general children ward - E47. Further test were completed with full explanations of what was happening, Whilst we missed the intensive care of the previous ward the staff here were very friendly and accommodating.

Finally, after six days our son was discharged and though nothing was actually found - which is technically good - he was tested thoroughly with a full explanation in writing.

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Response from Nottingham University Hospitals NHS Trust

I am grateful that you have taken the time to provide feedback. This must have been an incredibly worrying time for you all so I’m pleased that our staff could make it that bit easier for you and feel confident that your son was in safe hands. I’ve shared your comments with staff on the various wards and departments you mention.

You might be interested to know that nominations are currently open for NUHonours, our annual staff awards. In light of your experience you might wish to make a nomination (the Children’s Wards fall under the Family Health Division). If you wish to do so, you can find out more and nominate via our website: https://www.nuh.nhs.uk/nuhonours

I hope your son is feeling better.

Best wishes,

Kerry Webb.

Matron, Nottingham Children’s Hospital.

Response from Ellena Stansbury, Patient Experience Co-ordinator, Derbyshire Health United

Thank you for providing your feedback regarding your experience with the NHS 111 Service. Derbyshire Health United value patient feedback to ensure we are working to the high standards we adhere to achieve.

I am very pleased to hear that our Call Advisor was calming and helped you through what must have been a very difficult and anxious time for you and your family. I have shared your comments with our Call Advisors.

I do hope that your Son is feeling much better now.

Best wishes,

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Response from East Midlands Ambulance Service

Dear Johnus,

Thank you for taking the time to share your experience with us. It must have been a very worrying time.

We know our ambulance crews appreciate receiving feedback and will make sure we include extracts of your message in our staff newsletter.

If you are able to share a bit more detail with our Patient Advice and Liaison Service (PALS) eg date, time and location for call, we will be able to share your feedback directly with the ambulance crew that responded. PALS can be contacted via emas.pals@nhs.net or telephone at local rate 0333 012 4216.

We hope your son continued to make a good recovery.

Kind regards,

Melanie Wright, Deputy Director of Communications and Engagement

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