"I don't know who is right and who is wrong"

Last February 2015, I saw my GP regarding a brown mark which had appeared on the white of my eye. I was told I had most probably 'poked' myself in the eye during sleep and it would go away.

August 2015, I had my annual eye check at the opticians. The optician found 'cells' in my eye and was concerned. Wrote to the practice requesting a referral to the eye hospital. Attending the appointment, I was diagnosed with 'corneal melanosis PAMS' with surgery expected in a week. The practice called me in for a meeting where I was told they were 'sorry, the condition is very rare and they will ensure doctors are more vigilant in the future'.

Once under the hospital I never heard from them again! Surgery sadly did not take place due to both eyes then becoming infected. In October 15, I then moved to Nottingham and now attend Queens external eye disease clinic.

The consultant has not performed the operation as yet and I live with blurred and double vision, discomfort and uncertainty. I have waited six months for an appointment, despite being told by my consultant that I should 'phone his secretary if things change. ' which they have drastically. I went to the GP who emailed him, to no avail. A month passed and I called again which at least brought a reply from my GP, and finally an appointment between 2 different hospitals. I don't know who is right and who is wrong.

From all of the information that I read on this condition, I should have had a biopsy and still have not. I have no way of knowing whether the 'cells or tumours' are benign or malignant and what the future holds. I don't know who to believe anymore.