"I’m not getting any clear answers"
About: Ayrshire Central Hospital Ayrshire Central Hospital Irvine KA12 8SS
Posted by Glacier962 (as ),
My husband was diagnosed with Parkinson’s disease in 2013 by a consultant neurologist in North Ayrshire. My husband was then referred to another consultant in South Ayrshire, this consultant specialized in the care of the elderly with an interest in Parkinson’s.
Although I’m trying to get a clear understanding of whether Parkinson’s disease is a neurological or geriatric medicine specialism I’m not getting any clear answers. My belief is that it is a neurological condition as I understand it can affect younger people also, in which case I need to know why my husband is not under the care of a neurologist.
I understood that following his diagnosis my husband would be seen at the hospital every 6 months, by the consultant and specialist nurse alternating on each appointment. However, this has not been our experience – there are / were three consultants in the area, 1 has left and 1 is on long term sick leave which leaves just one – I personally do not think this is enough to meet the demand for the level of care we were given to expect.
Another aspect of chronic conditions is the importance of continuity in care, building a rapport with a single consultant who is able to understand their patient’s specific circumstances and provide care accordingly. This has not happened, in our experience, and wondered if there were plans to address the need for more consultants and provision of clearer information.