"I have parkinsons disease (9years) ..."

About: Whiston Hospital

(as the patient),

What I liked

I have parkinsons disease (9years) and attend the clinic at whiston hospital only once per year. On that occasion I usually have a list that I want to discuss with my specialist. The whole visit can last less than 5 minutes. I have never been given the details of the PD nurse or referred to a phsyio. I think that this is a disgrace

What could be improved

PD nurse referral as a matter or course

Physio referral as a matter of course

support networks information made available

Specialist listenening to the patient. THEY ARE THE PERSON WITH PD

Story from NHS Choices

Do you have a similar story to tell? Tell your story & make a difference ››