"Patient being treated worst than Guinea pig"

About: The James Cook University Hospital

Renal Department- ignorant and unprofessional Consultant

I husband was diagnosed with chronic disease level four and with IgA neg about two years ago. In the first report, the doctor stated that the kidney should still be able to function in the next few years. We was worrying about the 'judgement'. We asked in one of the consultation after we get the report. In the meeting, I raised the question how come only based on ultra scan and blood they could be so certain the kidneys could still be functioning in the next few years? The doctor looked at me and said 'I have 14 years of experience based on these results, the doctor could be certained this is the case, the kidneys could still be functioning in the next few years. Was given 3-6years. I was concerned what if the judment wrong and cause delay in treatment? The doctor then replied 'I bet you with my life and house, the kidneys can still be functioning in the next few years.' The doctor repeated this in dismay, when asked is there any other diagnosis could be done to ensure this is the case.

Ironically, three months after the meeting, my husband was told by the doctor 'in rare cases, your kidneys have failed drastically. You may need dialysis soon. We were shocked and disappointed with the Consultant over confidence at the beginning and not putting the patient health first but their ego.

I decided to donate one of my kidney to my husband and started the live donor examinations. All gone thought clear. Even we are of different blood group but and passed the cross match. During the examinations both of our bloods were checked for any hidden diseases and both of us clear. No Hepatitis B was detected.

My husband started dialysis in November 2014. Transplant surgery was fixed in February 2015. However, the operation was cancelled because my sister in law stepped in said she was willing to donate her kidney to the bother. Due to the doubt, would the sister's kidney be better off for my husband, the operation cancelled with the intention to find out which kidney is better.

When my husband went for his normal dialysis in James Cook Hospital after came back from the Newcastle Freeman, he was told he has Hepatitis B!! This wasn't present before he started the dialysis!

In the beginning of the dialysis, my husband started developing serious body rash. But the Consultant could be bothered kept saying don't know why and promised to refer him to see dermatologist but never happened until now.

The doctor stopped his Hep B medication with the believe that could be the cause of the rash but the rash started before my husband started the Hep B medication!

Poor communication between the Consultant with the patient and the family. Requested to change Consultant but no update. It has been at least three months now my husband never seen them. What sort of care is this? We don't know what to do now. The more senior the position, lesser the integrity.

Story from NHS Choices

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Response from The James Cook University Hospital

Good morning

Thank you for your comments regarding the care and treatment afforded to your husband at The James Cook University Hospital.

I am sorry you have cause to complain and we will of course investigate this.

I should be grateful if you would contact the Patient Advice & Liaison Service (PALS) on 01642 854807 to provide us with further information, to enable us to investigate the issues you have raised and provide you with feedback.

Yours sincerely

Miss Barbara Bellamy

IG & Patient Safey Advisor


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