"Urology department, cancelled appointment, no treatment or help"

About: Castle Hill Hospital / Urology

(as the patient),

September 2014 I was diagnosed with retroperitoneal fibrosis which I received stents in both tubes into my kidneys. All I was told was I would need them changed every 6 months. I thought that was the solution to the problem but I then started to get kidney infections one after another most needing hospital treatment. Every time I was admitted I never saw my consultant I was treated for the infection and sent home. On my last admission in September 2015 my infection meant I was weeing blood all the time no one seemed concerned and I was told I would get an appointment to see my consultant.

After nagging for several weeks I got an appointment for December nearly 3 months after my last admission I am still weeing blood have pain a fever and fatigue to name a few symptoms my doctor says wait for the consultant. Now I have received a letter cancelling my appointment and moving it to the very end of December.

What do I do? No one seems to care if I go to a&e they will treat the symptoms and send me home how do I get a fix for this problem before my kidneys stop working?

In the year I have been under castle Hill urology care I have seen a consultant once.

I know they are busy but what do I do?

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Response from Castle Hill Hospital

Thank you for placing your posting on the NHS Choices website. We are sorry to read of your recent experience in the Urology Department.

We will ensure your comments are shared with the Urology team.

In order to address the concerns you have raised, we would like to invite you to contact our Patient Advice & Liaison Service (PALS) on (01482) 623065 or email pals@hey.nhs.uk.

They will be able to take further details and advise accordingly.

Thank you once again for taking the time to provide us with your views on local NHS services.

Kind regards,

Patient Experience Department

Hull and East Yorkshire Hospitals NHS Trust.

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