"Communication and administration problems"
About: Royal Hospital for Sick Children (Edinburgh) / Ear, Nose & Throat Royal Hospital for Sick Children (Edinburgh) Ear, Nose & Throat EH9 1LF
Posted by loveAiden (as ),
We waited months and heard nothing from ENT.
We then took our 2yr old for his operation to have his umbilical hernia removed.
However they didn't operate because they didn't know about his sleep Apnea.
SO I phoned ENT and they said they did not know why but his "Sleep clinic" referral record simply said removed, not triaged. So we had him put back on the list for the sleep clinic.
It seems to me the administration and communication is appalling and no doubt a lot of other people are suffering too.
It seems to me that you are best to take things into your own hands and follow up yourself. I think I should start asking for health records and carry them with me to medical appointments because they don't seem to be able to access or maintain a single source of truth i feel.