"Long standing Lyme disease and co-infections"

About: Bexhill Hospital Conquest Hospital Surrey and Sussex

(as the patient),

I have been unwell for nearly 6 years with no diagnosis. Until now as I have had private blood tests done in a lab in Germany and they found current activity against Lyme, Cmv, Ebv, Coxsakie virus and also Chlamidia phnuemonaie. To be honest I think and am very sorry to report that my treatment by the Nhs has been and to be honest still is shocking. I have not worked for at least half of the six year period for which half of that at least I have had to survive on Credit cards as haven't been able to get the support I need, as most of the Nhs tests I have had have been negative so apparently I am well?

I have just had to reduce my hours once again as I just can't cope physically, and am suffering with another really bad chest infection. Once again sitting at home frightened in pain and once again dealing with it all on my own. My immune system was also tested by the lab and that is also on the floor.. Expected range between 100-360, mine was 10.. Still the Nhs see no problem with that! ! Shocking service! ! I wish I lived in another country, where they take this more seriously! ! What can I say? ?

Do you have a similar story to tell? Tell your story & make a difference ››


Response from East Sussex Healthcare NHS Trust

We are deeply sorry to read your posting on Patient Opinion and learn that your experience of NHS services in this country have been poor. If you would like any aspects of your care with East Sussex Healthcare NHS Trust looked into, please contact our Patient Advice & Liaison Service on 01424 758090 or by email at: esh-tr.PALSH@nhs.net.

Alternatively, you could contact Healthwatch East Sussex who always want to hear from people about their experiences. Healthwatch is independent. The role of healthwatch is to make sure your views and feedback are heard and effect the decisions made by the people who deliver your services. They can be contacted on 0333 101 4007. or by emailing enquiries@healthwatcheastsussex.co.uk

Thank you for taking the time to let us know your views.

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful