"no funding for Lyme Disease treatment"

About: NHS East and North Hertfordshire CCG

(as the patient),

I was bitten in 2006 and went to Doctors as bites didnt clear up but was told they were nothing. I have been ill since that time getting steadily worse. I have seen about 8 different Consultants and Doctors who could find nothing wrong and told me to see a Shrink. I eventually mentioned the bites to a Consultant and had a test for Lyme disease, (which up to this time I had never heard of) which through the NHS was negative. I then did more research and realized that the NHS tests missed a high proportion of people with Lyme as the test were not very sensitive. I proceeded to have private tests in Germany an USA which came back positive for Lyme and co-infections. As the NHS wont recognize these tests I am having to pay for private treatment so far to the tune of £9000. Even if the NHS recognized the foreign tests they do not believe in Chronic Lyme and would only prescribe a few weeks of abx which is not enough, especially when you have had it for this length of time. I think doctors in the UK need to be taught about Lyme disease as most seem to be in complete denial.

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