"Very Unhappy with Follow-Up"

About: Conquest Hospital

I had a consultation with a doctor and I was happy with that. But I have been very dissatisfied with the follow-up service (or rather the lack of it). I was CC-d a letter sent by the consultant to my GP which stated that my ANA test was positive with a titer of 1 in 640. From what I have found from researching online, this result means that it is very likely I have an autoimmune disease, which might explain why I have had so many chronic aches and pains in the last few years. But the letter also stated that no further rheumatology input was needed. I at least wanted to speak to someone to find out what the positive result might mean. When I phoned up the rheumatology department, I was told a consultant would phone me back. But no one did. Over the next week or so, my wife and I phoned numerous times but each time we only got through to a recorded message saying there was no-one present to take the call. Finally I left a voicemail giving my name, address, phone number, and a reference number, and asking for someone to return my call. That was over a week ago and no-one has got back to me. All I wanted was to have one more brief consultation with a rheumatologist, either in person or by phone. The consultant said during my consultation that I could see them again if I wanted. But evidently that was not true.

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Response from Conquest Hospital

We are concerned to hear about the difficulties you're having with speaking to your consultant Rheumatologist about your ANA results and we would like to apologise for your poor experience.

May we suggest that you contact out Patient Advice and Liaison Service (PALS) if you are still waiting to be contacted.

PALS are an independent service that liaise with Trust Staff on behalf of patients and their families in order to address queries or concerns. They can be contacted on 01323 435886 or by email at: esh-tr.PALSE@nhs.net.

In the meantime, please be assured that your posting will be shared with key management staff in Rheumatology to act upon accordingly.

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