"Bad experiences for our daughter"
About: South Staffordshire And Shropshire Healthcare NHS Foundation Trust / Adult mental health South Staffordshire And Shropshire Healthcare NHS Foundation Trust Adult mental health ST16 3SR
Posted by olly (as ),
We have had bad experience with these people. Our daughter suffers with epilepsy and because she was not treated properly when younger her health has being permanently damaged. When acutely unwell she has not recognized us and does not know who we are. She is still having seizure activity and is under neuropsychiatric services.
Our daughter became like this again a couple of months ago and and is now gone. She does not know us anymore and regards us as strangers. The proffesionals wont tell us if she is ok, in my opinion they seem to take great delight saying our daughter does not want to have anything to do with us, which I think is cruel. We made a complaint and basically they were dismissive and we felt they were sarcastic and patronising. I feel they are sarcastic and there is nothing we can do.
Our daughter has brother and sisters, we are all strangers to her and her feelings are of complete disregard. My real worry is if she has a bad seizure and they don't tell us, if she died would we know? It's a night mare. As this has happened where she had bad seizures and hospitalised, she became catatonic under their care and only then could we get her under the right services, neuropyschiatry. She eventually became better, and this has always been our worst fear and now it has happened. We feel neuropsychiatric services have become a lot worse over the years.