About: National Hospital for Neurology & Neurosurgery, Queen Square

I have A.L.S., I requested an emergency prescription of riluzole last week. I was told to come the next day to U.C.L hospital 7th floor at s the stroke unit. This was the wrong information, in fact I should have come to the neurology hospital in Queen square as the U.C.L. didn't store my tablets. Today I am still waiting for an email confirming when I will eventually be told when my riluzole will be prescribed. I am going downhill very quickly, keep falling down, cannot talk, mainly housebound, have problem with my tongue and my swallowing. I have got the feeling that riluzole help me maintain a little bit of assurance.

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Response from National Hospital for Neurology & Neurosurgery, Queen Square

Thank you for taking the time to feed back to us. We are very sorry to hear about your recent experience of Neurology services at UCLH. We would be grateful if you could contact our Patient Advice and Liaison Service (PALS) via pals@uclh.nhs.uk or by calling 020 3448 3237 so that we can look into this.