"Concerns about lack of lymphoedema treatment"

About: Moseley Hall Hospital

(as the patient),

I am a patient of the Lymphoedema clinic at Moseley Hall, over the last 12 months my condition has deteriorated to an extremely poor level. I feel unfortunately that I have been rejected by the treating clinicians who view my condition as being too complex and that I am burdensome to them.

Matters came to a head February 2015, I was promised a home visit by one of the 2 clinicians who had been treating myself. My clinician arrived on the 9 February, at the same time as another clinician (chiropodist), this appeared to give her the excuse to not measure or examine me. She advised she would return tomorrow to carry out the assessment.

By the time she was leaving the house 10 minutes after arriving, the promise of a re-visit the following day had moved to a telephone call and a visit later in the week, to a telephone call later in the week and another visit to be arranged.

We did not hear back from the clinic, my husband and I called back twice the following week, firstly she was with a patient, the second time my husband was informed that she was on holiday. I did not receive a call back.

Today is the 5 April 2015 and I have yet to hear from my clinician. Due to my deteriorating condition and with the support of my GP and District Nurse I have been referred to St Giles in Lichfield. However I feel I need to highlight the poor care that I have received from the Lymphoedema clinic at Moselely Hall Hospital which has fallen below that expected based upon their own mission statement.

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Response from Alison Last, Associate Director of Patient Experience, Birmingham Community Healthcare NHS Trust

Dear Poppy14

I am very sorry to read of your extremely disappointing experience of the lymphoedema service. I would welcome the opportunity to look into the matter in order to understand how this unacceptable situation has happened and to provide you a full explanation. I am also keen that we learn from your experience to ensure that other patients do not experienced the same.

If you are willing and able to, please contact me by phone 0121 466 7128 or email alison.last@bhamcommunity.nhs.uk. If I am not available immediately I will return your call or email within 1 working day.

Thank you for contacting us via Patient Opinion, and please accept my apologies for your poor experience, and I look forward to hearing from you in due course.

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