"DID/MPD sufferers are being routinely misunderstood, and retraumatised in the NHS"

About: Birmingham and Solihull Mental Health NHS Foundation Trust / Adult mental health

(as a carer),

I have had it up to here with psychiatrists who in my opinion, make decisions based upon 5 minute interviews, being considered more knowledgeable than someone who has 4 years full time hands on experience of helping an individual. They never even ask. The fact that you have been a carer for a person for more than 4 years carries no weight at all.

It is absolutely 100% essential that an MPD (Multiple Personality Disorder)patient have a supporter, someone who knows their background involved with all consultations. Otherwise significant, and dangerous mistakes will be made. [details on request] I feel the practice of patient confidentiality which is used to shut out concerned friends from involvement has to stop. There should be a nominated "trusted friend" for all psychiatric patients.

In my case, signed letters were provided from the patient asking for me to be consulted on treatment decision making. These were ignored.

Firstly, DID, is not an illness, there is no chemical imbalance, it is an emotional disability. The mind is working perfectly well considering the traumatic memories it is coping with. Every behaviour is a result of logical causes and effects rooted in actual traumatic experiences. Medications cannot change the memories and past experiences that a person has had.

Therapy based treatment is reasonably well understood and documented, and is expected to be successful over a 5-10 year period. We are 10 years behind the US on mental health treatments for Dissociative Disorders.

Treatment with drugs is not helpful at all and is documented as being potentially counter productive. Yet this is typically the only option the NHS considers.

The words "we will just take a fresh look at the diagnosis" is a nightmare waiting to happen, since each of 30 personalities has their own problems, and will collect a different diagnosis. I feel that the doctor will get the tippex out on the previous guess, and the game starts all over again.

I feel that once someone has the diagnosis of MPD, there need to be guidelines that state, this diagnosis should not be changed,just because you don't know anything about it, or the current presenting symptoms look like X,Y, or Z. Consult an expert in MPD/DID, do not treat, do not medicate, do not coerce in any way at all!!!! (i.e. re-traumatise).

If you coerce a victim of severe trauma against their will you will trigger them to relive that trauma. If they were abused in unpleasant ways as a child and you come up behind them to administer an injection against their will, they will relive the experience.

My view is that every MPD/DID (Dissociative identity disorder), sufferer is being abused by NHS because of this ignorance.

I repeat the issue for clarity, every DID sufferer has traumatic memories that you will cause them to relive if triggered. Triggering may occur in any situation that is reminiscent of the original experience. If the abuse involved playing "doctors and nurses" then even being in hospital will be triggering, (think about it)

The ONLY way to avoid this is to listen intently to what they know about how to live with their condition and what those who care for them also know from experience.

I think its fair to ask why have you no Psychologists, or anyone who knows about MPD on staff at my hospital?

Why do you administer ECT rather than offer talking therapies?

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