"My tummy"

About: Liverpool Womens Hospital / Gynaecology The Royal Liverpool University Hospital / Trauma and orthopaedics

(as the patient),

Two years ago, I started with pain in my tummy. I kept going back and forth to hospital who gave me scans tests and told me my gallbadder was ok. I was also suffering with my bowels. I still am. Then, a few months on I'm still going back and forth. In so much pain I have got blood in my urine when they do dip stick had that also from when it started. Done ultra sounds and they still told me my gallblader was fine but am still in a lot of pain going to the hospital all the time then they ended up taking my gallbladder out. Still in pain, still suffering with my bowels. Then I was getting appiontments for gastroenterology. All the time I kept phoning, getting my appiontmens brought forward all the time. I was in so much pain and still am, but every time I went to hospital they would give pain relieve, some tests, then sent home. Then, I ended up going up back to the hospital, went in, they had a look and told me my uterus was all inflamed. Then I went to the women's hospital, they went in and had a look, done some tests, told me everything was fine.

I went back to the hospital again, in pain and they said don't care it's a women's problem, go back again told me everything was fine. I still had pain, went private told me it was my appendix. I borrowed the money, got the appendix out, went back six week later and they told me and my ex partner that it was inflamed and scarred and a bit of stool in it, but when it went back to my Dr it was normal but I said to my Dr if it was, why did they take it out but again last year my Dr sent me to the Spires Hospital to see a gastroenterology expert. Again, he done a scan and then told me I am lucky my bowel has not died. He told me I had thickening which can't go to my bowel and not getting enough blood to my bowel. He said I would be quick to see a vascular Dr, so I paid because I was scared. I did not want to wait. He told me I had it but it was not my problem now maybe two or three or more down the line it would be then am still in pain pushing again back and forth to hospital. Then they told me it was a spasm to my bowel, then it was irritable bowel. Dr said neuropathic pain. I went and seen neuropathic pain Dr who said you can't get it in your tummy, but I also forgot I was also losing weight as well, but I was put on medication for neuropathic pain. I was told it was women again, back to the women, not that again, then back to the Spires to see the same gastroenterology who told me he was not changing is opinion that I had the thickening to my bowel which can't go. So, he gave me a scan that showed there was no thickening on it, but where has it gone? He told me it can't go, but I have phoned private places to ask them to look at my new scan. They told me they can look at my old one. It did not matter because if you have got thickening, it can't go, but I have got scan reports from last year with it on and scan reports this year with it not on. I have just being told different things from day one.

I am still in pain, my bowels are not right, but I have still being going back and forth to hospital and emailing Dr. I have now been told it's chronic pain. Now they're putting me with the pain team, but I have been going to my Dr and hospitals drop-in centres with my leg also swelling and pain. Noone is taking notice because of neropathic pain and when I have had to see Dr, I have been telling them that I am stressed. Everywhere I have gone I have told them this, so now it's all getting put down to that.

I am in a lot of pain with my tummy and leg that swells and pain. Why won't they listen to me instead of putting it all down to stress? I would be telling lies if I said I was not, but I am after this long. Who would not be? But everything is getting put down and it it's not fair to do that to me. I have been to see Dr who said why have you been sent to me? This is a vascular problem.

I don't know where I am with it all, but all I know is it was not stress when they took my gallbladder out and my appendix. Now I am on a lot of strong pain killers, am not eating properly, can't sleep good because I am scared. Now because I am still in pain, leg pain and swelling and I can't get help because it is now all put down to stress. I just don't know where to turn now. All I have got is the pain team who can only help with my pain, but you know your own body, that there is something wrong, but I am getting up in the morning feeling so ill I have nowhere to turn. I am so down now because I can't get help with my leg as well, but I knew everyone was going to put it down as stress. Please if you can get me some kind of help, I feel so ill and am struggling to eat but they put it down as my medication. That's why I feel like this. I told them I was like this before I started on it.

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Response from Royal Liverpool and Broadgreen University Hospitals NHS Trust

Thank you for your comment. We are really sorry to hear that you have concerns and continue to feel unwell. Please get in touch with us so we can look into this for you. You can contact PALs by phoning 0151 706 4903/2265, via PALS@rlbuht.nhs.uk or typetalk 18001 0151 706 4903/2265. They will be able to assist you. You can also get healthcare advice and support at any time by phoning NHS 111.

Response from Alison Gallie, Patient Experience Officer, Liverpool Women's NHS Foundation Trust

We are very sorry to hear of your experience and that you continue to feel unwell. We would be happy to investigate your concerns further and would be very grateful if you could contact the Patient Experience Team on 0151 702 4182/4061/4416 or via email at Pals@lwh.nhs.uk.

Thank you for your feedback.

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