"multiple delays which caused extended suffering"

About: York Hospital

I tried to put a review in a week or so ago but it hasn't been published... In September i went into A&E with acute urine retention due to a stricture which reached obliterative stage, very painful, won't go on about that, not enough space here, was a mess up, put it that way, in the morning I was given a choice of 2 ops, 3 weeks for smaller temporary op, i chose the big more curative but risky op, 8-12 weeks wait, then a few weeks later I developed a UTI from the catheter, went to docs, they showed me on the PC the referral to leeds as sent. Then I had problems with the normal catheter, asked to be changed to a suprapubic one, got that changed middle of October, and i was told the referral hadn't actually been sent as "they were still waiting on my choice"..... O_o and then offered enrollment in a trial which I went for, i met the representative urologist on November and joined the OPEN trial, i was, that day, randomised into the repeat smaller op and told id be put down as urgent ( last time I had this op as none urgent it took 8 weeks, so urgent i was thinking 2-3) Which, after complaining to the waiting list department, i got a date for 5th Jan, last week, ( pre op was 31st December, i said I'd need a bed due to last time I had delayed excessive bleeding, and the nurse noted it as important) and 2 hours before due in theatre i was told there was no beds and it was unsafe to go ahead with op as they wouldn't be able to monitor me post op, as day unit closed at 7 and no where to be transferred from there. I was told itd take 4 weeks to get back in, or i could change back to the big op, which could be anywhere between 8-16 weeks, I was financially forced to choose smaller op, as company sick pay ran out last week, and as anyone who's working / middle class will tell you, statutory sick pay is awful, and i would be losing far too much money waiting for that long. After pleading to urologist iv been rescheduled for 19th, still be losing £200 is wages and still 95% housebound. Also None urgent = 8 weeks, urgent = 10 weeks.... For same op..... experienced 3 new most painful feelings of all time pains since September, one of which was a SPC change last week which wouldn't have happened if I'd had the op. If the referral to leeds had actually been sent after I decided it in September, id of had the big curative op weeks ago, but due to delays out of my hands iv waited 4 months for the smaller op I could of had done 3 months ago. If money was no issue I would wait for the big op now, but the pain is debilitating, plus id be like £2000 down. Would go into the red :/ I'm grateful for the help as I know I could be alot worse off, so I can't be too disgruntled, but alot of pain and suffering could of been avoided, especially last 6 weeks. codeine barely takes the edge off. The nurses and doctors do a great job, they have it so hard for an underpaid job. So i thank them for their help this last while :)

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Response from York Hospital

Thank you very much for your posting. Your comments have been passed to the teams concerned. If you would like to discuss your experience in more detail please contact our Patient Advice & Liaison Service (PALS) on 01904 726262 or email pals.york@york.nhs.uk and staff will be pleased to help.

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