"I had no support"

About: Cambridgeshire and Peterborough NHS Foundation Trust / Eating disorders

(as the patient),

After waiting on a waiting list for over a year in one area of the UK for one on one CBT-E for Bulimia Nervosa, I eventually had to move across the country due to family relocation. The care I was receiving was first class. I had monthly appointments to monitor my weight and discuss any difficulties I was having with my Key Worker. I found this support crucial to keeping my condition stable. I knew that if I needed support between appointments, it was just a phone call away.

When I moved the service referred me to the service local to my area...who worked vastly differently. I had to wait 3 months for an assessment alone. In this time period I had no support what so ever, allowing my condition to plummet.

After my assessment I was told that they only offered Group CBT-E, and as someone who suffers anxiety too I wasnt all too keen on this treatment plan. I was then told that I would receive a letter when I reached the top of the waiting list for the next group and that it would be held in the mornings because they understand how people, like myself, work.

During the wait I had no support, and continued to battle alone, and when my letter came I found the group I had been put in was a session in the afternoon, around 1 1/2 hours from where I work, making it impossible for me to arrange the time off work to attend. I called in saying I would be unable to make it and I was told there was nothing more that could be done unless I wished to wait for the next group but it was unsure when this would be.

I was less than amused with the care I have received in the Cambridge area and felt that I have been abandoned in a highly vulnerable state, when it was already hard enough to seek help.

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Response from Annie Ng, Head of Patient Experience, Cambridgeshire And Peterborough NHS Foundation Trust

Dear Flowertotfee,

I am very sorry to hear of your experience with accessing the service from our Trust. I would like to apologise that this has added to your stress.

Although you mentioned it was a service in Cambridge, I would like to understand the situation you have described a little more so that it can be looked into. We always want to improve the service that we provide.

Are you able to contact me so that we can discuss this further?. You can contact me via the Trust PALs inbox - pals@cpft.nhs.uk or Tel: 01223 726774

Kind Regards,

Annie Ng

Head of Patient Experience

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