"Shunt complications"

About: National Hospital for Neurology & Neurosurgery, Queen Square

I am a 28 year old female that had my first LP Shunt on Sept 1st 2014. I so looked forward to a solution to my 2 years of agony having repeated spinal taps for IIH. 3 weeks post surgery I developed horrendous pain and went to my local A & E hospital, Southend General As they are not familiar with the shunt I was taken to the London Hospital For Neurology and Neurosurgery, Queens Square, London. I was assured that the pain I was experiencing was normal and would settle in a couple of weeks. Reassured I went home armed with the usual arsenal of painkillers. Seven weeks on from surgery I still have the pain that's getting progressively worse. I am now sitting in Southend hospital. The staff here know that my pain is caused by the shunt coiled under my diaphragm but the London Hospital is refusing to accept me until every test for anything other that shunt complications are carried out. Southend staff say they are being awkward for what reason? my agony is being prolonged by this childish behaviour. I'm like a hot potato no one wants. London hospital said were there to be anymore problems go again to my local A & E and I would be transferred up to the hospital that specialises in shunt surgery. I and my family are totally disgusted with the treatment, and I will take matters further when I'm well enough. What a sham.....

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Response from National Hospital for Neurology & Neurosurgery, Queen Square

Thank you for taking the time to feed back to us. We are very sorry to hear about your recent experiences. We would be grateful if you could contact our Patient Advice and Liaison Service (PALS) via pals@uclh.nhs.uk or by calling 020 3447 3042 so that we can look into this.