"Great care for Crohn's disease"

About: Sheffield Children's Hospital / Gastroenterology

(as the patient),

I had been suffering for a number of years with OFG (Oro-facial granulomatosis) and had been losing weight and having diarrhoea. I had an endoscopy and laporoscopy a couple of years ago but it didn't show much. In April this year, I went to my usually 12 month appointment and the dietician went through my notes and noticed I had lost a lot of weight and hadn't grown in height. She said she wanted an immediate endoscopy and laporoscopy again which I had in May. This time they found a lot of large ulcers and told my parents I had Crohn's and had to be admitted to the hospital immediately, which was a big shock to me and my parents.

I was in the Sheffield children's hospital for 5 days without any solid food while they found out what was the best treatment for me to deal with the ulcers in my stomach and bowl. I was put on a Modulen only diet for 6 weeks and have to take strong immune suppressants and antihistamines for a lot of years. It was my first time in hospital and I thought it was going to be horrible, but I really enjoyed my stay. I thought the staff were brilliant and took really good care of me.

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Response from Sheffield Children's Hospital

We're delighted to hear that you were happy with care you received. The relevant departments have been made aware of your feedback. Thank you for taking the time to tell us about your experience at Sheffield Children's.

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