"very disappointed"

About: Leicester Royal Infirmary

My son was very ill last year and was referred to the paediatric outpatients clinic where the paediatrician did lots of tests suspecting possible Systemic Lupus. His blood tests showed positive ANA low ferritin and low C4. He was anaemic with continuous leg pains. His blood was monitored and the C4 was still low. He was given iron supplements and picked up slightly but developed other quite disturbing symptoms which I was advised by a Lupus helpline could have been indicative of Lupus. We attended another appointment to be told that my son had been passed on to another paediatrician who completely played down his symptoms and instantly discharged him. Now a few months later he has more symptoms. He should never have been discharged and a formal complaint will follow. Disgusting! I took him back to the drs who were equally as disgusted who referred him again to LRI who then sent the referral without informing myself or the drs to another hospital to deal with it? Consequently the referral got lost in the system causing even more delays! Now he's under a hospital who have never seen him before who didn't even have his notes when I went for his initial appointment and had no idea what the original paediatrician was assessing him for, what tests had been done or treatment given. But the worst thing is that My son is still ill and has been neglected in our opinion! Awful hospital!

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Response from Leicester Royal Infirmary

Dear reviewer, Thank you for taking the time to post your comment. We are really sorry to hear about the difficulties you have experienced through your son’s treatment. This does not reflect the level of care we expect our patients to receive. We would like to look into your son’s case further so we can improve our service and ensure this doesn’t happen again. Please give me a call if you are happy for us to do so, so I can get a bit more information. My number is 0116 258 6693. Kind regards, Tina Clegg Service Manager for Children’s Services Leicester’s Hospitals

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