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My 25 day stay when I had Auto Immune Encephelitis

Story from nhs.uk

"My 25 day stay when I had Auto Immune Encephelitis"

About: Queen Elizabeth Hospital Birmingham

This hospital truly delivers the best in care. I was admitted on 23/8/13 in to A&E when I had lost the use of my legs and was unable to speak. I spent 1 day in CDU before being moved to ward 411 where doctors tried to determine what had caused this. At this time I had entered in to and Involuntary Spasm State (ISS) which meant I couldn't control my actions. I would try to throw myself out of my bed and spasm uncontrollably and attempt to rip out my IV lines. I was in this state for 8 days. During this time, a doctor advised what I might have had and was immediately sent for an MRI scan which showed a Teratoma growing on my right ovary. This was causing my immune system to attack my brain. I was given plasma exchanges and steroids and was prepped for surgery by a Dr from the nearby Women's Hospital. Following my operation I spent 5 days in intensive care. The staff were always friendly, caring and above all, were there for me as my short term memory wasn't good and they had to repeat things to me constantly. After this I was moved back up to the same ward I was on before my op and the staff were amazed at my swift recovery. I was discharged on 17/09/13 and have had physio and regular follow up outpatient appointments with the Neurology team. I feel without the help, support and dedication of the staff I would not have made such a swift recovery and return to the person I was before my illness. Thank you to all the team, you truly are amazing.

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Responses

Response from Queen Elizabeth Hospital Birmingham 9 years ago
Queen Elizabeth Hospital Birmingham

Submitted on 22/10/2014 at 10:18
Published on nhs.uk on 23/10/2014 at 04:01

Thank you for taking the time to provide feedback on your experience at the Queen Elizabeth Hospital Birmingham. We are delighted that you have had such a positive experience during your treatment and have continued over time to make a good recovery. Your comments have been passed onto the senior staff responsible for the areas that cared for you; they will ensure your feedback is shared with their team members. It is a real morale boost for staff to receive feedback like this from patients and their relatives. It means such a lot to know that the hard work, dedication and commitment of our staff is recognised and valued in this way. It is also very satisfying for staff to hear they have made such a difference to patients and made sure your experience under our care has been positive. At University Hospitals Birmingham we are always keen to receive feedback from our patients and visitors as it helps us to ensure we are delivering the best in care. Please continue to tell us if things went well so that we can share this with the teams who cared for you. If we don’t get it right please let us know so that we can take action to make sure we get it right in the future. There are a number of ways you can do this, some of which are listed below; - Fill out our patient experience surveys; we have them for day case or short stay patients, inpatients, and those who attend the Emergency Department. There are general surveys asking about all aspects of your experience as well as others relating to specific aspects of your stay e.g. the operating theatre and food. You may also be contacted by post and given the opportunity to complete a survey relating to your discharge from hospital or your outpatient attendance. - Fill in a Trust feedback leaflet, displayed in all patient and public areas – please ask staff if they are not easily visible. - Become a ‘mystery patient’ and tell us about your experience, you can do this just once or each time you attend the hospital. For further information on these and other ways you can give us your feedback please contact patientexperience@uhb.nhs.uk or telephone us on 0121 371 4491/2

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