"Problems with my daughter's move from child to adult healthcare services"

About: Grantham & District Hospital / Paediatrics Pilgrim Hospital / General surgery

(as a carer),

My daughter has just come out of children services for health care, which was excellent in every department. I could not fault her care at all and, for that, I thank Grantham hospital Kingfisher unit. But now she has moved into adult services, her care is not being met by anybody. She has a rare life limiting condition and had problems with her peg sight in December. After many visits to doctors and hospitals, she was finally admitted to Pilgrim hospital at Boston just before Christmas. She was sent to clinical decisions unit were we waited for nine hours before being dealt with by a junior doctor, who was left unsupervised and making decisions about patients. It was run like a conveyor belt blocked up.

She was then moved up to the surgical ward, where her treatment did not get any better except from one nurse and domestic, who showed an understanding towards her and the nurse who shared our concerns. The senior surgeon came in and discharged her 48 hrs later and said there was nothing wrong, we took her home in pain and discomfort we had enough of watching this and ended up taking her to Nottingham who dealt with her in 20mins. They ended up fitting her with a temporary Mickey button, until they could order a bigger Mickey button and then refit it. The tract to her stomach had grown and the acid was burning her skin. Her old Mickey button was to small, this had been missed by everybody who seen her except QMC in Nottingham.

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Response from Jennie Negus, Deputy Director of Patient Services, United Lincolnshire Hospitals NHS Trust

picture of Jennie Negus

I am very sorry that my reply is so long after your experience and will do little if anything to ease what was clearly a very worrying time for you and your daughter.

The transition from child to adult health services can be very traumatic for some families and I am sorry that this was the case for you.

I am confident that the relationships that we now have across health and social care mean that this is much easier for families and patients and we for example have close working with mental health, community health and social care services on a daily basis across all our hospitals including Pilgrim Hospital.

Thank you again for telling your story; please be assured that even after so long it is being listened to.

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