"Misdiagnosed by Stepping Hill"

About: Salford Royal / Neurology Stepping Hill Hospital / Neurosurgery

(as the patient),

I had a seizure 2 years ago, I went through all the stuff they said and I went back to see a doctor (first fit clinic) at Stepping Hill. Me and my mother explained everything, including these weird jerks in the morning, but he was reluctant to do anything. He sent me home feeling unsure, scared, upset.

Finally I got the confidence to go to my doctors and tell them about my jerks in the morning that I dropped everything smashed valuable things out of my control. I was getting angry frustrated. I couldn't do anything a normal teenager could do. I wasn't and couldn't go out alone. I couldn't even have a bath on my own or even cook my own food! But did anyone do anything? No.

I thought I was overreacting, until it got worse! I went back again. They didn't do anything and 2 years later, I had enough. I went in there crying, screaming, not knowing what was wrong with me. I even went bed at 7.30 and slept all the way through, to see if it was tiredness but it wasn't. I felt inhuman.

Finally I got somewhere. They referred me to Salford royal. I was waiting quite some time, until I rang up and spoke to the manager, who got me in that day. Within 10 minutes of being in there asking me and my mother questions, she diagnosed me juvenile myoclonic epilepsy. I was recently doing my driving lessons, ready for my test, I had to stop it straight away. Once again I felt like rubbish.

It's horrible to be diagnosed but for someone to leave it 2 whole years when I could of done everything I wanted to do. They left me to wonder and get worried, scared, alone unsure of who to trust! The doctor should of diagnosed me 2 years ago. I am now going through pathways to help prevent this happening to anyone again. It's not about money! It's about answers, helping other children/adults in the same situation and hope it won't happen again. I'll never actually trust any doctor again after his misjudgement.

The doctor that did diagnosed me is lovely. She explained everything! Helped me if I ever needed anyone just pick up the phone she was wonderful! I guess Salford a better hospital than Stepping Hill.

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Response from Cath Marsland, Head of Risk and Patient and Customer Services, Stockport NHS Foundation Trust

I am saddened to read your comments and would ask that you contact the Patient and Customer Services Team so we can investigate this fully

PCS 0161 419 5678

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful

Update posted by Geowheater (the patient)

Thank you I will be ringing you tomorrow on the number above you have gave me thank you speak soon