"He has made my son feel worthless "
About: Queen's Medical Centre / Trauma and orthopaedics Queen's Medical Centre Trauma and orthopaedics NG7 2UH
Posted by sadie123 (as ),
I am so upset with the way we were treated at the clinic at East Block by my son's consultant.
We went for my sons pre operation assessment. We had x-rays and bloods done, we had an appointment to see the consultant and the support person for my son. She was there to offer help to explain things to my son. We were taken into the room where the consultant was sat at the desk looking at my son's x-rays. The nurse asked us to sit down. I was sat next to my son on the floor as there was not enough room as 2 student or members of his team were there along with the support person, the nurse and me and my son.
The consultant never acknowledged us when we went in and when he did finally speak, he asked who I was, even though we had met before. He never once said hello to my son. He never really said hello to me. He just went into telling us all the bad things that could go wrong with the operation ie my son could be permanently paralysed from the neck down, he could lose the use of his bowels and there could be infections. There could also be risk to his life, he could lose the use of his legs. I was so shocked, even the support person seemed shocked.
I said my son was scared this morning now I think you have terrified him as he terrified me at what he was saying. He wasn't nice about it. He was so abrupt, but to say these things in front of my autistic son was in my opinion bang out of order. He never once asked how my son had been, had he had any pain or anything. He just went straight into telling me what could happen.
I asked him are you telling us this because you don't want to give him the surgery. He said he had to state the facts. I said well you told us the negatives so what are the positives. He said the operation is for cosmetic purposes only. I said but what about his organs being pushed to one side, would this improve? He cant bend over or lift, will this improve? He said no.
So I said how will my son benefit from the operation? He said as its for cosmetic purposes he wont have a hump on his back. I was so shocked. I said I would not let my son go through that. He seemingly blanked my son. Whether it was because he was autistic, I dont know, but I have never been treated that way before. He seemed so cold and heartless. I walked out of the room with the support person and I told her I never expected him to talk like that and she seemed to agree with me.
When I got my son home, he was very upset and wanted to know why the man didnt like him and why he was saying all the bad things that was going to happen to him. He told us my son's condition will not get any worse, even though when we first saw him last year only my sons top part of his spine was curved, now he also has a curve on the lower part of his spine. He says he has stopped growing now so nothing will change. I hope for his sake he is right, because if my sons condition does get worse, I will take the matter further. He never asked us any questions about how the scoliosis affects my son. My son turns blue and suffers badly in the cold. This could have something to do with his condition, but the consultant has never bothered to ask about any symptoms. He has so made my son feel worthless and me feel ashamed to have let my son go through that.