"Not taken seriously"

About: Hull Royal Infirmary

I'm 24 years old and have suffered with motor / vocal tics and restless leg syndrome since I was a child. My parents never took me to see a specialist because they seemed to think it was 'habitual' or that I was 'putting it on' - frustrating as that is, they're not doctors and I can't blame them for not knowing about neurological conditions and so on. I also suffer with pretty severe concentration issues - I can sit down to do a piece of work and take an hour to write the first sentence - which is the main reason I was hoping to finally get a diagnosis (to start exploring treatments). Having thoroughly researched my symptoms, I have come to the conclusion that I either have Tourrettes/ADD, Aspergers or am impossibly lazy and like to flail around to the point of injury and sleepless nights. Anyway, as someone who suffers from social anxiety and prefers to avoid phone calls / appointments and basically everything of that nature, it's taken me this long to work up the gall to do anything about it. and I was relieved have finally set the ball rolling. Well apparently there's nothing wrong with me. Because I wasn't noticeably floundering like a fish out of water in the 10 minutes we were speaking - despite explaining that like many sufferers of these conditions, I can suppress the tics to a degree when in public. And because I have a degree I apparently cannot suffer from lack of concentration. A 3-year degree that took 5 excruciating years to achieve and maybe half the skills I need to get a related job. Anyway it's probably as much my fault for not persisting or explaining the situation well enough but my anxieties set in and I just wanted to get out of there. Either way though I felt I wasn't at all taken seriously because of my age and that I was being dismissed basically.

Story from NHS Choices

Do you have a similar story to tell? Tell your story & make a difference ››


Response from Hull Royal Infirmary

Dear Jack, Thank you for placing your posting on the NHS Choices website. We are sorry to read of your recent experience and we will ensure that the staff concerned are made aware. If you would like to discuss this matter further with us, please do not hesitate to contact our Patient Advice & Liaison Service on (01482) 623065 or email on pals@hey.nhs.uk . or contact the patient experience team on (01482) 675189 where we would be more than happy to help. If you would like to become more involved in decisions about local healthcare, we are recruiting members. By becoming a member you receive our quarterly newsletter, find out more about your local NHS and help us improve local services. You can also attend our ‘medicine for members’ sessions and respond to questionnaires. You don’t need any special skills or experience to become a member; you just need an interest in local health services. There is no commitment, you can get involved as much or as little as you choose. For more information please either email foundation.trust@hey.nhs.uk or telephone the Corporate Affairs office on telephone number (01482) 675165. Thank you once again for taking the time to provide us with your views on local NHS services. Kind regards, The Patient Experience Team Hull and East Yorkshire Hospitals NHS Trust.

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful