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"A Functional Neurological Disorder patient's view"

About: Peterborough City Hospital

I've had a long wait for diagnosis but when I finally reached the neurologist's office, I found her knowledgeable, sympathetic and informative. The only complaint I have is that there was no in-person follow up after the MRI came back clear and the diagnosis was confirmed, instead I was just discharged back to my GP with a diagnosis that is not easy to get one's head around! It would be more reassuring to remain under a neurologist. As it happens, I've had new symptoms which my GP has been left to handle and reassuring as he is, I feel that I've been somewhat abandoned by the specialist. I'm due to begin treatment soon (though that was a five month wait from confirmation of diagnosis to Beginning of therapy). Please take FND patients more seriously. I've joined a forum recently and there is a lot of confusion and even disbelief going on. More research is needed and more sympathetic neurologists like the lovely lady that I saw.

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Responses

Response from Annette Parker, Care Quality Strategic Support Manager, Care Quality, Peterborough and Stamford Hospitals NHS Foundation Trust 11 years ago
Annette Parker
Care Quality Strategic Support Manager, Care Quality,
Peterborough and Stamford Hospitals NHS Foundation Trust
Submitted on 16/06/2014 at 13:55
Published on Care Opinion at 15:10


I apologise for the delay in this response.

Thankyou for your story. Following on we are having discussions as to whether we could employ a neurology specialist nurse to fill the 'information gap' that you mention. I do hope that your therapy is working for you.If you would like to discuss this further then do email me at annette.parker@pbh-tr.nhs.uk

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