"Iiving in pain, in the mental heath system"

About: Nottinghamshire Healthcare NHS Foundation Trust

(as the patient),

I have been a patient since I was 14 years old, and so has my brother. I was diagnosed with having bipolar and my brother schizophrenia. we both are now in hospital but in two different areas. I’m in Nottingham he's in Wolverhampton. I am now 20yrs old and he is 22yrs old. we both have been sectioned, but over 1year, it's not right we are both intelligent, we have potential in life to do what is normal like everyone else. my mum had a breakdown in 1982 she survived and is coping at the moment, but to see my mum struggling for help where she needs it most no-one listens to her views. my brother and I went to special school as youngsters, we are both vulnerable as we care for others around us. the fact is we don't like the way staff treat us. they do not understand the reality of ones pain and this becomes a battleground in the long run. I've been in so many hospitals so has my brother, it's a shame! I'm in the QMC in Nottingham where i stay at a rehab, but they say they have not got facilities to help me. Why am i classed as hard to treat yet all mental illness is the same, it's crazy! just a pay packet for them and not working to there best interest as my life has no value to those who work in this profession. I look around me and see people get abused by staff and when you say anything about the issue, they say it's down to your illness, or imagination. This has got to stop. we are much human as any one else, feelings, needs. I don't believe in neglect of duty...This system needs to be put right as some wards are crowded and other patients influence others like me. it's a learned process being with them 24 hr 7 days a week. I’m too intelligent to wanting to be stuck in another world where people are not in reality like chickens in a pen. barbaric! we are the forgotten people but used for £24,000 a year pay-packet.
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Response from Paul Sanguinazzi, Head of Involvement and Experience, Nottinghamshire Healthcare NHS Foundation Trust

picture of Paul  Sanguinazzi
Dear Kez, Thank you for providing this feedback on our services. Nottinghamshire Healthcare NHS Trust has only signed up to Patient Opinion recently so we have only now seen your post. We are really sorry to hear about the difficulties that you and your brother have had and that you felt your experience on our wards was poor with staff treating you badly. I was saddened to hear that you felt that we had not offered you the help you need to reach your potential. It is always our intention to support people to live their lives to the fullest and as independently as possible but it is clear from what you say that we haven’t yet achieved this in your case and we want to help. You mention in your posting that you care for others around you. We know that this can be hard and can impact on your health. Carers Federation can provide information and support for carers on an individual basis and also run a Carer Support Group. You can contact Carers Federation on 0115 9128028, 0115 9128029 or 0115 9128030. I am upset to hear that you feel that the staff you have dealt with see ‘no value’ in your life. We always aim to do the best we can for everyone we see and I hope that since you posted on here your experiences in our Trust have been more positive. We would be really interested to hear about this and would encourage you to post again or speak to us on the number below. It sounds as though you have some clear ideas about how we could do better and what would really make a difference to you – please tell us. It is so valuable to us and it is important to us that people tell us about their experiences so that we can improve our services. I have thought carefully about your experience and how it could have been better and I will be passing on your comments to staff on our wards at QMC and their managers to ensure that we learn from your experiences. If there are still any outstanding issues, please contact PALS on 0800 015 3367 or by email and we will be happy to discuss them with you.
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