"Outstanding care in neonatal ICU and maternity"

Anything else?

Our son was born at home with a rare condition, Scolded Skin Syndrome. This was not evident at birth but started to develop very gradually 3 hours later. My husband and I feel humbled by the care we have received. The attending midwife saved the baby's life by noticing something was wrong and packing us off to the hospital for much needed antibiotics. We had 2 days on the maternity ward and then moved to neonatal ICU for a further 4 days. This was a horrendously difficult time for us, as the symptoms also matched those of a vastly more serious condition, Epidermolysis Bullosa. The hospital not only treated our son quickly and appropriately for his symptoms, but also helped us through the process with a kindness, sensitivity and understanding well beyond their remit. We certainly did not feel like 'just another number', we are in awe of the humanity of every single member of staff. We should especially like to mention our first nurse, one of the most incredible people we have met. We were in need of somebody highly skilled and full of empathy to spend (literally) hours with, in the middle of the night, bandaging up our fragile, poorly and potentially severely disabled newborn. Similarly other nurses helped us through a couple of extremely tough nights. We could not have asked for anybody better. Finally, we should mention that the resources put at our disposal were, similarly, outstanding. We very much felt that all the stops were pulled out to help us, both in terms of physical resources and in terms of allowances made. We shall never stop feeling grateful but shall remain, as mentioned above, feeling humbled by our experience.