"Over the weeks given hope when I thought there was none"

About: Inclusion Matters Liverpool

(as the patient),

Yes. I, for a number of years have cared informally for my wife who suffers paranoid schizophernia.

I had to leave 'our' martial home because of my wife's behaviour (what other illnes does that happen? ). She had a relapse of her illness after many years of stability. During those years, there was only contentment, laughter and happiness.

I was forced to leave my/our marital home. I walked the streets and slept on friends settees for months. Eventually I found (without any support) myself a bedsit. No bed or furniture or money. I left with the clothes I stood up in.

I still walked for miles to support my wife. She had no friends and her family had turned their back on her. Sometimes she was stable, other times delusional and psychotic.

I tried every day from 8am to 8pm to keep some quality of life going. All this between agitating phone calls and aggresive texts.

10 years on stress and strain recently kicked back and caught up with me. I suffered an extreme panic attack. I believe to be past traumatic stress through all the upset.

I was referred by my GP to Inclusion Matters. I was vulnerable and extremely anxious. I was treated with respect and humility. No value judgements and no assumptions.

I was over the weeks given hope when I thought there was none. I have come away with coping techniques that I use every day. I have a bit to go yet. However, the day I first went to Inclusion Matters I had none at all.

I can only thank Inclusion from my heart.

Do you have a similar story to tell? Tell your story & make a difference ››


Response from Sian Kavanagh, Manager, Inclusion Matters

Dear Pilot196

Thank you very much for such a heart felt message. I'm extremely pleased that, after going through so much for so long, you experienced support, reassurance and hope from the treatment you received at our service.

Using the techniques every day will reinforce your skills, I hope your life becomes increasingly stable.

Thank you for taking the time to share your experience with us.

Best wishes and good luck for the future.


  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful

Updates, changes and questions related to this story