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Patient engagement is a Good Thing - but only on the NHS's terms.

Update from Care Opinion

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picture of Paul Hodgkin

According to the folks from Dr Foster the PPI industry – i.e. everyone in the NHS involved in PALS, complaints and 'engaging' the public - employs a cool 34,000 people in England and costs upwards of £600 million per year. Which makes you wonder. Especially as the government seems to ramp up the importance of engagement with one hand whilst disrupting it with multiple reorganisations with the other.

And  that word 'engagement' always strikes a strange note. Do they mean as in marriage? Or  gears? Or perhaps armies in battles?

In the last 2 weeks I’ve spent 3 different days discussing all this (which has been about 2 days 6 hours too much)  but the messages have been clear:  the discussion within the NHS has little new in it. It is all talk of systems, and processes and listening and diversity of strategies. Which is all good (if old) stuff.

But what is striking is how much the NHS exists in its own self referential box. Discussion of the world of voice outside the NHS (blogs, Youtube, Facebook etc) was conspicuous by its almost complete absence.  The fact that Twitter may be toppling the Iranian government sparks wonder at the power of these new fangled gizmos to do strange things to strange people in strange lands, but not the first hint of an idea that it won’t be long before the NHS gets subject to similar firestorms.

From a purely selfish point of view this is not all bad as it leaves Patient Opinion free to beaver away at getting ‘voice outside the NHS box’ working without anyone thinking that it is too important. From another perspective it’s fairly depressing – it's as though, at the time of Caxton and the invention of the printing press, everyone was busy saying ‘Books to engage the masses? Ah, no thanks, I’m a parchment person myself. Can’t beat a good quill and a tame scribe to get the message out, and the peasants just can't seem to get enough of those illuminated surveys we’re so good at’.

Response from Athena on

You might like to have a look at CancerChat (cheery little name eh?)the CancerResearch chat room for peopkle with cancer. The Moderators strongly believe in Censorship. If rather follows on from the usual "patient experience" (to use the argot) of being treated like a stupid personby surgeons, doctors et al. It is very hard to believe that the NHS is aware that we have entered the 21st century. I had always hoped I would be able to avoid too much contact with the health service, but such is not my fate. It would have improved my patient experience if I hadn't witnessed the unedifying experience of British censorship.

Response from jamesm on

This is so true it makes me want to cry.

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