"Rehabilitation after surgery to remove a meningioma"

About: Cameron Hospital / Recovery & rehabilitation Cameron Hospital Recovery & rehabilitation KY8 5RR

Posted by Christine Sharp (as a service user), 2 years ago

I was admitted to Cameron Hospital in September 2022 for rehabilitation following a second surgery to remove a right sided meningioma brain tumour. The operation was successful although small pieces of tumour were left as they were attached to blood vessels. These are to be removed with radiotherapy in the near future.
I had my original diagnosis in January 2014 and my first surgery was March 2014. The tumour had left me with epilepsy (focal seizures), partial numbness, sensory disturbance amongst other things.
On the day of my second operation, I walked into surgery then woke up with no sensation, control or movement from my hip down on the left side. The decision was made to transfer me to Cameron where I have undergone physiotherapy, occupational therapy, psychology and nursing care.
I have been here for just over 5 weeks and I am now able to walk short distances using elbow crutches. I use a wheelchair for longer distances and a Zimmer frame when I am having a bad day. I am to be discharged in a few days.

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Responses

Siobhan Mcilroy

Head Patient Experience, Corporate Services,

NHS Fife

Submitted on 23/11/2022 at 11:54

Published on Care Opinion at 11:54

Dear Christine
Thank you for taking the time to post on CareOpinion, NHS Fife welcomes all feedback. My name is Siobhan McIlroy and I am the Head of Patient Experience. I am sorry for the delay in you receiving a response.
It sounds as though you have been through a difficult time, but I am pleased to read that you are making progress and will soon be discharged home. I will pass on your comments to the team at Cameron. Wishing you all the best, take care, Siobhan McIlroy.

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Nicole Whyte

Integrated Teams Manager, Intermediate Care Teams,

NHS Fife

Submitted on 23/11/2022 at 15:03

Published on Care Opinion at 15:12

Dear Christine
I echo Siobahn's apology for the late response.
Thank you for your comments and kind words regarding your care in Cameron and it is great to hear that you made progress with your rehabilitation.
The Multi -disciplinary team at Cameron pride themselves on ensuring that all patients who come into the wards receive the best of care so I will ensure that the Cameron team are made aware of your comments.
Now you are home I hope you are continuing to make progress and enjoying your home comforts.
Wishing you all the best.
Nicole

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Donna Murray

Senior Charge Nurse, Sir George Sharp Unit,

NHS Fife

Submitted on 23/11/2022 at 16:25

Published on Care Opinion at 16:26

Thank you so much for taking the time to share your experience. Please accept my apologies for the delay in replying, unfortunately this went to another area before I gained access to respond to you.
As a team, we are so proud of the progress you made during your rehab on the ward. You were always keen to participate in therapies and showed determination to achieve your goals. We pride ourselves in providing high quality care and I'm glad that this was your experience whilst with us and will pass on your comments to the MDT.
During your stay we did discuss the concerns you raised regarding showering. I have spoken with the staff to ensure that everyone's dignity is maintained whilst transferring between the shower room and their bedspace. Thank you for bringing this to my attention so that we can make improvements to our practice. We are always looking for ways to improve our care and if there is anything further you wish to discuss, please don't hesitate to get in touch.
I hope that you are settling back into life at home with your husband and boys and that you continue to improve now that you are at home with your family. It was a pleasure looking after you.
Take care,
Donna

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Update posted by Christine Sharp (a service user) 2 years ago

Hi Donna,
Thanks for responding, I hope my comments were helpful. I know your hands are tied with the age and layout of the building but I appreciate your efforts to look into improvement.
I really enjoyed my stay at Cameron, even though I moaned a bit. You and your team are fantastic and I doubt I could receive better care anywhere else. You should be very proud.
I was a bit disoriented for a few days after coming home but I am getting there. Its difficult when your foot keeps getting stuck in chair legs and other obstacles 😐. Things are hard but I'm getting there and I have the outpatients team to help me in the future.
Thank You so much for the care and support I received, you are all amazing. Keep up the good fight.
All the best.👍💖

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