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"Breast cancer follow up - the process should be made clearer"

About: Gartnavel General Hospital / Breast Clinic

(as a service user),

I was diagnosed with breast cancer a year ago, and could not fault the care and treatment I received from the doctors, nurses and other health professionals at Gartnavel General Hospital. Every member of staff I met dealt with me in a caring, professional manner and helped me manage my extreme anxiety following my diagnosis.

My concerns relate to my follow-up treatment. After completing my treatment I was given an appointment to return for a review in one year. I was advised that at this point I would have a further mammogram and see my consultant or another health professional. I felt anxious attending this appointment and was very concerned to find that no mammogram had been scheduled for this day. I was examined by one of the breast nurses who then advised me she would arrange an appointment for a mammogram which would be in about 2 or 3 weeks and I would be advised of the date of this appointment by post. She advised that the result of the mammogram will take 4-6 weeks.

I feel that the patient-centred treatment I received at my first diagnosis has now disappeared. Having this appointment followed by a mammogram weeks later is both stressful for me and I would think requires more resources from the NHS. As my original cancer could not be picked up by a physical examination but was diagnosed by screening, surely I was always going to require a mammogram. I now feel more anxious than before this appointment and know I will have to wait about 8 weeks before I have the mammogram results.

I know that there are a lot of pressures on the NHS, but I feel that the clinic could manage patient expectations better. I had believed that the review appointment would be a one stop shop, and I would leave the appointment having had a mammogram and results. This may be not be possible but nevertheless the process should be made clearer to patients. Overall, I am extremely grateful for the care and treatment I received and hope these comments can be used to help make the process more patient-centred in the future.

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Responses

Response from Nicole McInally, Patient Experience and Public Involvement Project Manager, PEPI, NHS Greater Glasgow and Clyde 2 years ago
Nicole McInally
Patient Experience and Public Involvement Project Manager, PEPI,
NHS Greater Glasgow and Clyde
Submitted on 16/11/2022 at 09:05
Published on Care Opinion at 09:05


picture of Nicole McInally

Dear Composerhx49

Thank you for sharing your feedback on Care Opinion.

I am pleased to hear that all the staff you met were caring, professional and helped you managed your anxiety during this challenging time.

I appreciate that you were anxious about your 1 year follow up appointment and I am sorry that the process was not clearly explained to you. The Breast team have advised that the follow up appointment includes a face to face consultation, a breast examination and then a mammogram is arranged. If, after the breast examination there are any concerns, patients are referred to a one-stop patient clinic for full assessment, this would include a mammogram, ultrasound and biopsy if required.

I understand that you are worried and would encourage you to speak to your Breast Clinical Nurse Specialist to discuss your concerns.

I would like to apologise on behalf of the Breast Care Service for the additional distress and anxiety caused. We will highlight this to the Breast Consultants and Breast Clinical Nurse Specialist to ensure patients are aware of the patient pathway and that they may not receive a mammogram at the follow up clinic and may have to wait for results. Thank you for bringing this to our attention.

Take Care

Nicole

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