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I am in great pain and still in limbo

Posted By Jojow1996

"I am in great pain and still in limbo"

About: Beatson West of Scotland Cancer Centre University Hospital Monklands / Medical Oncology (Ward 16)

(as the patient),

I was diagnosed with neuroendocrine cancer a year and a half ago, and up to a point had excellent healthcare from the team at The Beatson West of Scotland Cancer Centre. However some of my care has been split between there and University Hospital Monklands, and ever since my care has been sporadic and in lots of cases unhelpful.

I'm still very symptomatic, even since surgery to resect my bowels for the cancer, and have had a follow-up MRI and a CT scan. The MRI was supposed to be checked by the Glasgow Royal Infirmary's Pancreatic MDT team, this has not happened. The CT report, a month and a week later, has not been completed.

I feel like I am in limbo, with not much happening and I am still in great pain, discomfort, and having issues.

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Responses

Response from Elaine Burt, Chief Nurse, Regional Services, NHSGGC 2 years ago
Elaine Burt
Chief Nurse, Regional Services,
NHSGGC

Submitted on 22/09/2022 at 18:12
Published on Care Opinion at 18:12

Dear Jojow1996,

Thank you for your post today. I was very sorry to read that your care has not been co ordinated across the different services and that you are experiencing a great deal of discomfort.

Nicky Donnelly Lead Nurse at the Beatson in Glasgow would be able to assist you to help get your care back to what it was previously. Nicky can be contacted on 0141 301 7079 or by email at Nicky.Donnelly@ggc.scot.nhs.uk.

We can then support you going forward and hopefully address these issues.

Kind Regards

Elaine Burt

Chief Nurse Regional Services

NHS Greater Glasgow and Clyde

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
Response from Mhairi Simpson, Nurse Consultant, University Hospital Monklands, NHS Lanarkshire 2 years ago
Mhairi Simpson
Nurse Consultant, University Hospital Monklands,
NHS Lanarkshire

I am the professional lead for cancer nursing and a member of the cancer care management team.

Submitted on 23/09/2022 at 15:03
Published on Care Opinion at 15:03

picture of Mhairi Simpson

Dear Jojow1996,

Thank you for taking the time to post your feedback. I too am sorry to read of your experiences with regards to your care.

With regards to your care at University Hospital Monklands can I ask you to contact me via the Patient Affairs Team 01698 752300.

Kind Regards

Mhairi

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Response from Elaine Burt, Chief Nurse, Regional Services, NHSGGC 2 years ago
Elaine Burt
Chief Nurse, Regional Services,
NHSGGC

Submitted on 27/09/2022 at 16:21
Published on Care Opinion at 16:21

Dear Jojow1996,

I believe Irene Wotherspoon one of our Clinical Nurse Specialists has been in touch with you to assist with the Glasgow Royal Infirmary MDT communication. I hope this support and information has been helpful to you.

Kind Regards

Elaine Burt

Chief Nurse Regional Services

NHS Greater Glasgow & Clyde

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
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